Voices of 5,000+ Patients: The First National Survey on Experience of Care at U. S. Hemophilia Treatment Centers

Thursday, Sep 22, 2016 2:00 PM – 3:00 PM ET

Register_ButtonShared decision making and a positive patient/healthcare provider relationship foster patient satisfaction, which is a core patient-reported outcomes measure that is critical to clinical care, quality, and research. Historically, U.S. Hemophilia Treatment Centers (HTCs) have individually assessed patient satisfaction. However, a national, standardized survey to enable comparison of HTC characteristics, trends over time, and variation by region was lacking. To remedy this information gap, in 2015 the U.S. HTC Network devised and conducted the first ever national HTC patient satisfaction survey.

In this webinar, the panelists will describe the strategies used to develop and pilot the survey, administer the survey to HTC patients, and manage and analyze the data collected from respondents. Presenters will describe key national results and show how regional differences in participant demographics and diagnoses influence patient satisfaction.

Learning Objectives:
At the end of the presentation, the participants will be able to
1. State the purpose of the U.S. HTC patient Satisfaction Survey
2. Describe the value of regionalization for survey design, dissemination, and data management.
3. List at least two key national findings on patient satisfaction with US HTCs
4. Describe how the US HTC Patient Satisfaction can be of value to stakeholders.

This webinar is free and open to public health professionals, clinicians, and researchers who desire more information about hemophilia and blood disorders. Advance registration is required and the number of attendees is limited.

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