September 2015

♦ News from NCBDDD Executive Committee

♦ Saving Babies

♦ Protecting People

♦ Helping Children

♦ Improving Health

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News from NCBDDD Executive Committee
Share Your Story with the Friends

If you are interested in sharing your personal experience, please draft a story that you can submit to the Friends for consideration. Your story should be about your personal experience with one of the Friends Thematic Areas.

Saving Babies
September 9: International Fetal Alcohol Spectrum Disorders (FASD) Awareness Day

baseball player throwing ballIn honor of FASD Awareness Day that was held on September 9 and to continue raising awareness about alcohol use during pregnancy and FASDs, we have a feature on the CDC home pageLiving with FASDs: In Taylor’s Own Words. The direct link to the feature, where it will remain accessible after it is gone from CDC’s home page, is www.cdc.gov/features/fasd-taylors-story/. Also, check back for a Spanish version of the feature that will be available soon at www.cdc.gov/spanish/especialesCDC/ Read more…


NCBDDD Shares Expertise at the India National Consultation on Wheat Flour Fortification
A group of attendees at the India National Consultation on Wheat Flour Fortification

Attendees at the India National Consultation on Wheat Flour Fortification included NCBDDD Director, Coleen Boyle (front row, far right), and Public Health Analyst, Amy Cordero (third row, far right).

NCBDDD Director, Coleen Boyle, and Public Health Analyst, Amy Cordero, visited New Delhi, India in late August to attend the India National Consultation on Wheat Flour Fortification, hosted by the India Ministry of Health and Family Welfare (MOHFW). Dr. Boyle and Ms. Cordero provided expertise on the role of folic acid in the prevention of neural tube defects, the global burden of folate insufficiency and birth defects, and global experiences with fortification. Stakeholders at the meeting agreed on the effectiveness of fortification in preventing folate sensitive neural tube defects, the efficiency of fortification as a strategy to rapidly reach the population, and the cost-effectiveness of fortification. In addition, meeting participants and stakeholders agreed that wheat flour fortification should move forward in India as part of a comprehensive strategy to improve micronutrient status, and the participants drafted an outline for an operational framework during the meeting. Dr. Ajay Khera, the India MOHFW Deputy Commissioner for Child Health, concluded the meeting by stating that India’s wheat flour fortification operational framework will focus on iron, folic acid and B12 to tackle the problems of neural tube defects and anemia, and that the fortification framework must be developed in the context of the Indian system and previous experiences, particularly with iodine fortification of table salt. A technical resource group is being formed among meeting participants and stakeholders to develop draft operational guidelines on wheat flour fortification to be presented to the India MOHFW.

NCBDDD Fetal Alcohol Spectrum Disorders (FASD) Prevention Team Welcomes Grantees

On August 24, the NCBDDD FASD Prevention Team welcomed partners from University of Wisconsin and Denver Public Health to Atlanta to discuss their work with American Indian populations. The grantees are working with American Indian primary care clinics to reduce risky alcohol use and prevent alcohol-exposed pregnancies.

Photo caption: Meeting Attendees from left to right: Joe Sniezek (NCBDDD), Nancy Cheal (NCBDDD), Georgiana Wilton (University of Wisconsin), Pam Gillen (University of Colorado, Denver), Catherine Hutsell (NCBDDD), Katie Langland (Denver Public Health), Angelica Salinas (University of Wisconsin)).

 

protectingPeople@2x_background Protecting People
Prevention and Treatment of Venous Thromboembolism During Pregnancy

October 13, 2015, 2:00 -3:00 p.m. ET

October 13 marks World Thrombosis Day—a day to focus attention on the often overlooked and misunderstood disease of thrombosis. The International Society on Thrombosis and Haemostasis (ISTH) is proud to collaborate with the Centers for Disease Control and Prevention (CDC) in supporting World Thrombosis Day and the efforts to place a global spotlight on thrombosis as an urgent and growing public health problem. In honor of World Thrombosis Day, ISTH and CDC are co-hosting a special webinar on venous thromboembolism (VTE) and pregnancy.   Pregnant women are especially at increased risk for thrombosis, particularly venous thromboembolism (VTE). Women who have a history of thrombosis or inherited or acquired risk factors for VTE (also known as thrombophilias) may be much more likely to develop VTE when pregnant. Additionally, pregnant women who are hospitalized or have surgery are at increased risk for developing healthcare-associated VTE (HA-VTE). In this webinar, Dr. James will discuss the key issues concerning the occurrence of VTE during pregnancy and the postpartum period. Read more…

helpingChildren@2x_bacgroundHelping Children
NCBDDD’s Learn the Signs Act Early Team Releases Free Training

A new NCBDDD, free training is available for downloading: Watch Me! Celebrating Milestones and Sharing Concerns. Too many young children with developmental delays or disabilities miss the opportunity to benefit from early intervention services that can help them reach their full potential. You can play an important role in changing that.  Help us promote CDC’s new Watch Me! Celebrating Milestones and Sharing Concerns training for early care and education providers at www.cdc.gov/WatchMeTraining. This FREE training provides early care and education providers with tools and best practices to help them work with families to monitor every young child’s development and help children with developmental delays get the early support they need.  The 1-hour training is FREE, available online, and is approved for continuing education credit.  Promote this training today to make a difference in the lives of so many children!

Photo Caption: The Watch Me! Celebrating Milestones and Sharing Concerns training includes pictures like this one as well as several audio and video files.

Improving Health No BackgroundImproving Health
Health Care for Americans with Disabilities — 25 Years after the ADA

register hereTuesday, September 29, 2015, 10:00 a.m. -11:00 a.m. ET

Join the Friends of NCBDDD for a webinar to discuss advancements made in health care for Americans with disabilities over the last twenty-five years and recommendations for further progress.  Recently, the New England Journal of Medicine (NEJM) published the Perspective entitledHealth Care for Americans with Disabilities — 25 Years after the ADA.”  Presentations and discussion during this webinar will focus on the topics outlined in the Perspective, including gains in public health and healthcare systems, persisting health and healthcare disparities, and how health practitioners and delivery systems can play a role in improved care. Read More…

September is Emergency Preparedness Month

Image of emergency response vechicles. Throughout September, CDC and more than 3000 organizations—national, regional, and local governments, as well as private and public organizations—will support emergency preparedness efforts and encourage Americans to take action. For Preparedness Month 2015, CDC’s Office of Public Health Preparedness and Response plans to focus on communities of preparedness. Each week will focus on a unique part of the community. Learn more at http://www.cdc.gov/phpr/preparedness_month.htm and follow @CDCNCBDDD and @CDCEmergency for the latest information.

How I Walk – A Campaign to Rebrand the Word Walking

how i walkThe National Center on Health, Physical Activity and Disability (NCHPAD) launches a new campaign, How I Walk, in support of the U.S. Surgeon General’s Call to Action on Walking and Walkable Communities. The visual campaign aims to promote walking as an inclusive physical activity term that is individualized.

The U.S. Surgeon General has issued a Call to Action to Promote Walking and Walkable Communities to address major public health challenges such as heart disease and diabetes. “Everyone deserves to have a safe place to walk or wheelchair roll. But in too many of our communities, that is not the reality,” said Dr. Vivek H. Murthy, the 19th U.S. Surgeon General. Read More…

Leadership Opportunity

The University of Nebraska Medical Center’s Munroe-Meyer Institute for Genetics and Rehabilitation seeks a dynamic, visionary new Director to lead this federally designated University Center of Excellence for Developmental Disabilities Education, Research, and Service (UCEDD) at a pivotal time in its rich history. Learn more!

News from NCBDDD
NCBDDD Personnel Announcement:

Craig HooperNCBDDD is pleased to announce that Craig Hooper, Ph.D. former Chief, Laboratory Research Branch, Division of Blood Disorders, has been selected as the new Director of the Division of Blood Disorders.   Dr. Hooper received his BA from Wake Forest University and a Ph.D. in Pathology from The Ohio State University.  After completing a post-doctoral fellowship at the Mayo Clinic, he came to CDC to the Division of Host Factors.  He has remained with what is now known as the Division of Blood Disorders for the past 28 years.  His activities have revolved around translational research in hemostasis with emphasis on the molecular and inflammatory aspects of thrombosis and hemophilia.  

Executive Committee
Champions
NCBDDD’s Social Media Corner
Upcoming chats for @CDC_NCBDDD

Topic: Fetal Alcohol Spectrum Disorder (FASD)
Description: Participants will discuss facts and preventive measures on FASD
Date: Wednesday, September 9, 2015
Time: 1:00PM ET
Host: NIH National Institute on Alcoholism and Alcohol Abuse (NIAAA) and the National Organization on Fetal Alcohol Syndrome (NOFAS)
Missed the chat? Follow @NIAAAnews & @NOFAS_USA on Twitter and use the hashtag #NIAAAChat.

Topic: Orthopedic and injury prevention
Description: General topics will cover orthopedics and injury prevention, with a different focus for each hour of the chat, structured by age groups.
Date: Thursday, September 24, 2015
Time: 12:00PM-3PM ET
Host: Sharecare, Inc. (@SharecareInc)
To join: Follow @SharecareInc on Twitter and use the hashtag #SafeisthenewStrong.

Topic: World Thrombosis Day
Description: Medical experts, patient advocates, and healthcare organizations will discuss VTE and blood clot risk associated with hospitalization.
Date: Tuesday, October 13, 2015
Time: 12:00PM ET
Host: @ThombosisDay
To join: Follow @ThrombosisDay on Twitter and use the hashtag #ClotChat to participate!

Topic: Thrombosis
Description: Participants will learn and discuss facts and tips on blood clots
Date: Tuesday, October 20, 2015
Time: 1:00PM ET
Host: @DrRichardBesser
To join: Follow @DrRichardBesser on Twitter and use the hashtag #abcDrBchat to participate.

How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK

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Submit Here
button to submit articles to AUCD 360 form News items may be submitted for consideration via email to acostalas@aucd.org. Send in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 10/12/2015. Photos and web links are encouraged!!

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The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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