Physical Developmental Delays: What to look for
NCBDDD is pleased to announce the launch of Physical Developmental Delays: What to look for. Designed for parents concerned about the physical development of their child, the tool reinforces that parents know their child best. Physical Developmental Delays: What to look for was developed as part of a three-year collaboration between the Center and the American Academy of Pediatrics (AAP).
This project was developed in response to research generated from the Center’s Muscular Dystrophy Surveillance, Tracking, and Research Network. Researchers working on Duchenne muscular dystrophy found an average delay of two and one half years from when parents first noticed the earliest sign or symptom of physical developmental delay in their child to when their child received a definite diagnosis of Duchenne muscular dystrophy.1
The sooner a child with a physical developmental delay gets a diagnosis, the sooner the family can access medical care, early intervention services, and special education resources.
Early recognition can lead to improved and more tailored care for people living with muscular dystrophy so that each person can reach his or her full potential.
Partners and policymakers: Help us spread the word by sharing this new tool with your stakeholders.What you can do
- Parents: Share the link to Physical Developmental Delays: What to look for with your family, friends, and coworkers. Consider posting to your social media.
- Pediatricians: Reacquaint yourself with the AAP’s Clinical Report on Motor Delay for guidance, referral, and testing recommendations.
- Ciafaloni E, Fox DJ, Pandya S, Westfield CP, Puzhankara S, Romitti PA, Mathews KD, Miller TM, Matthews DJ, Miller LA, Cunniff C, Druschel CM, Moxley RT. Delayed diagnosis in Duchenne muscular dystrophy: data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Journal of Pediatrics. 2009 Sep;155(3):380-5.
For more information, please read the Web feature New Tool for Parents Helps Address Concerns.