October 2016

♦ News from NCBDDD Executive Committee

♦ Saving Babies

♦ Helping Children

♦ Protecting People

♦ Improving Health

♦ News from NCBDDD

♦ Connect with Us

♦ Submit Here

News from NCBDDD Executive Committee
Voting Open for Friends of NCBDDD Executive Committee


Cast your vote by November 3! One vote per organization.
Meet the Nominees


Friends of NCBDDD In-Person Meeting at AUCD2016

Register_ButtonDecember 7, 2016 | 1pm-5:00pm
The Renaissance Washington, DC Downtown Hotel
Ninth Street,  NW, Washington, DC, 20001
Volunteers are need join the planning committee.

Communications Committee Update


Did you know that the Friends of NCBDDD members have access to a calendar of events?

The Friends of NCBDDD Google calendar is open to all members to add events and observances.

Visit the calendar here

Other resources from the Communications Committee:

LinkedIn Group
  • There is now a LinkedIn group for members to share stories, events, research, and other relevant information group members would like to share. Link here
Follow us on Twitter

dialogue_resizedIn the future the communications committee will facilitate Twitter chats around topics of interest, and post relevant information to share with followers

Dissemination Tools

To aid in dissemination information about the group and increasing membership there are now tools for dissemination: (see attached)

  • A template for sharing stories
  • An overview of the Friends of NCBDDD
  • A draft presentation
  • A dear colleague letter for recruitment

For more information, or if you like to join the communications committee, please contact Shannon Haworth, Communications Chair, shaworth@aucd.org

Saving Babies
Call for proposals: The 2017 AMCHP Annual Conference

imgres-1Kansas City, Mo.
Deadline for proposals:
Thursday, Oct. 20, 11:59 p.m. ET

The Association of Maternal & Child Health Programs (AMCHP) invites you to submit a proposal for the 2017 AMCHP Annual Conference (March 4-7). The theme for the 2017 conference is Engagement with Intention: Inclusivity, Diversity and Non-Traditional Partnerships. Read more…

Fetal Alcohol Spectrum Disorders (FASD) Resources


 In recognition of September as Fetal Alcohol Spectrum Disorders (FASD) Awareness Month, the American Academy of Pediatrics (AAP) recently announced some newly available resources for pediatricians as they work with children who exhibit the range of physical, mental, behavioral and/or learning problems associated with prenatal alcohol exposure.
Read more…

Emergency Preparedness: Including People with Disabilities

emergency-kitEmergency Preparedness: Including People with Disabilities, an online catalog of materials developed by NCBDDD funded State Disability and Health Programs to help enhance disability inclusive emergency preparedness plans, was launched on September 26th.  This resource features information and resources that public health professionals, emergency managers, and community organizers can use to support people with disabilities in emergency preparedness and response. You can click here to view the catalog.

Protecting People
National Health Interview Survey NHIS

vp3_700_nhis_new_4_12As you know, the content of the National Health Interview Survey (NHIS) is being updated in 2018 to better meet the needs of data users. We appreciate the comments you sent earlier in our redesign process.  The comments we have already received have been incredibly helpful in the development process.  On October 7, 2016, a notice was placed in the Federal Register regarding the NHIS redesign. This is the first time that draft questions have been released for feedback. The Federal Registry notice period extends through November 7, 2016.  Staff from NCHS welcome your comments on the proposed NHIS questionnaire during this period.  Please visit http://www.cdc.gov/nchs/nhis/2018_quest_redesign.htm for more information or to make a public comment go to http://www.regulations.gov/ and enter Docket ID: CDC-2016-0092 into the search bar.

 Venous Thromboembolism in Children and Young Adults: State-of-the-Art in Diagnosis, Treatment, and Prevention

db8cbefa0f64b7ddbe720d88aff62702Thu, Nov 3, 2016
2:00 PM – 3:00 PM EDT

In this upcoming CDC webinar, Neil Goldenberg, MD, PhD, Director, Thrombosis Program, and Director of Research, Johns Hopkins All Children’s Hospital, and Associate Professor of Pediatrics, Division of Hematology, Johns Hopkins University School of Medicine, will present an overview of VTE in children and young adults. He will discuss what is currently known about risk factors, diagnosis, treatment, outcomes, prognostic factors, and prevention strategies. He will also discuss what’s known about obesity and its relationship to VTE risk in young patients. Finally, he will address approaches to the early diagnosis and optimal management of challenging scenarios in young-onset VTE, including May-Thurner anomaly and venous thoracic outlet syndrome. Register here…


helpingChildren@2x_bacgroundHelping Children
Remember to Check Out a New Resource from NCBDDD’s “Learn the Signs. Act Early.
Milestones in Action Photo and Video Library!

lsaeMilestones in Action is a FREE image library that features photos and videos of children demonstrating developmental milestones from 2 months to 5 years of age. This tool was created to help parents, early care and education providers, and healthcare providers identify developmental milestones in children and know if there is cause for concern. Read more…

AUCD Zika 2.0

public-health-is-for-everyone-phone-imageGiven that Zika is now spreading locally in the US and a whole cohort of babies may now be born with this virus, there is an urgent need to educate public health practitioners on developmental monitoring, screening, early identification of issues, and how to speak sensitively with families about their concerns. This is the focus of Zika 2.0. Read more 

Zika Webinar

zikaDHDD Director, Georgina Peacock, presented on a webinar for Family Voices on September 27 titled “Zika: What Family Leaders Working in Public Health Need to Know”. Georgina spoke on the Zika transmission and prevention, and gave updates on what the CDC’s response entails.

Dr. Peacock attends the Society for Developmental and Behavioral Pediatrics Annual Meeting

sdbp_logoIn mid-September, Georgina Peacock moderated two panels at the Society for Developmental and Behavioral Pediatrics (SDBP) Annual Meeting in Savannah, Georgia related to disparities in autism and developmental screening and how to define the autism population through surveys, clinical record surveillance and other methods.

October is ADHD Awareness Month

 Parents typically attend 8-16 sessions with a therapist and learn strategies to help their child. Sessions may involve groups or individual families. The therapist meets regularly with the family to monitor progress and provide support Between sessions, parents practice using the skills they've learned from the therapist After therapy ends families continue to experience improved behavior and reduced stress.October is also ADHD Awareness Month, and the theme is “Knowing is Better”. The Child Development Studies team updated the ADHD webpage with maps and resources for states, including a new provider density map by county. Find the Information and Resources for States here, so now, knowing is easier!

October is ADHD Awareness Month – Knowing is Better


“Knowing is Better,” this year’s theme, applies to the millions of people affected by ADHD, whether they or their loved ones have the disorder. During October, CHADD is helping the ADHD community learn ways to advocate for awareness – to eliminate both shame associated with having ADHD and the stigma that others associate with it.  We are producing a webinar series for ADHD Awareness Month, social media messages emphasizing Knowing is Better, an ADHD Awareness Month Toolkit for tips on getting the word out to local communities and media, and partnering with other organizations to host a webpage resource. For more information, check out October is ADHD Awareness Month– Get in the Know!  CDC/NCBDDD Child Development Studies team updated the ADHD webpage with maps and resources for states, including a new provider density map by county. Find the Information and Resources for States here, so now, knowing is easier!

CHADD Annual International Conference on ADHD

chddadhdCHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) will hold its 28th Annual International Conference from November 10-12, 2016 in Costa Mesa, CA, bringing together researchers, clinicians, educators, adults with ADHD, parents of children with ADHD, and others seeking science-based information.  More than 40 of the most respected and world-renowned presenters in the field of ADHD will provide expert insight into the latest ADHD treatments, advancements, research and more.  To learn more about the conference, check out  Annual International Conference on ADHD.

Improving Health No BackgroundImproving Health
Inclusion Works: For Business, Opportunity, Innovation, and Health

webinar-thumbWednesday, October 19, 2016
1:00 p.m. – 2:30 p.m. ET

The importance of accessible health promotion initiatives continues to be an issue within the IDD populations as age-related problems and lack of environmental control impacts their health needs. These challenges show the need for the scaling up of evidence-based programs and health promotion efforts into the communities where people with IDD live, work, and play. Programs including HealthMatters, a specific evidence-based health promotion program has shown success as a health promotion program in multiple states. Community based organizations also play a vital role in implementing health promotion programs and influencing policy support. This webinar will further discuss the need and importance of health promotion initiatives and scalability for the IDD population. Policy implications and recommendations will be discussed. Register here

Health Promotion and Women Living with a Disability

webinar-thumbWednesday, October 19, 2016
2:30 p.m. – 3:30 p.m. ET

October is Breast Cancer Awareness Month, a perfect time to learn more about the importance of reducing barriers to health promotion for women living with a disability. Join this webinar to learn more about great resources offered by the FDA Office of Women’s Health and their Pink Ribbon Sunday Program, the Friends of NCBDDD focus area of “Improving Health of People with Disabilities,” the American Association on Health and Disability, breast health awareness resources, the National Breast Health Coalition for Women with Disabilities  and the Association of University Centers on Disabilities Public Health is for Everyone resources. Join this interactive webinar to meet new colleagues and learn more about resources to support you in your health promotion efforts for women living with a disability. Register here…

Women’s Health in the Peri- and Post-Menopausal CHD Patient

achaWednesday, October 26, 2016
7:00 p.m. – 8:00 p.m. ET

Women with congenital heart disease (CHD) are enjoying the full range of reproductive years.  Twenty years ago, there was little data about the risks of birth control and pregnancy in women with complex CHD.  Now, these same women are once again pioneers.  This time it’s in a growing area of cardiology – “aging with congenital heart disease”.  Are you one of those women with CHD who is now confronting menopause?  If so, you don’t want to miss this webinar.  Register today to learn how menopause impacts your entire body and the potential risks and benefits of hormone replacement.  More Information I Register here

News from NCBDDD
Executive Committee
How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK


Submit Here
News items may be submitted for consideration via email to acostalas@aucd.org. Send in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 11/10/2016. Photos and web links are encouraged!!


  • AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910
  • The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.
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