October 2015

♦ News from NCBDDD Executive Committee

♦ Saving Babies

♦ Protecting People

♦ Helping Children

♦ Improving Health

♦ News from NCBDDD

♦ Connect with Us

♦ Submit Here

News from NCBDDD Executive Committee
NHIS Redesign Sign-On Letter

As many of you know, the content of the National Health Interview Survey (NHIS) will be updated in 2018. The Office of the Director of the Division of Health Interview Statistics is requesting comments on the NHIS redesign. For more information, go to http://www.cdc.gov/nchs/nhis/2018_quest_redesign.htm. We understand that the disability questions are scheduled to be 2 years on and 2 years off.  We need to indicate how important disability questions are to the core of the NHIS. The core questions are asked every year and we need disability questions to be asked every year in order to represent disability as a demographic. We are working on a sign-on letter from Friends of NCBDDD to encourage NHIS to include disability questions in the core. Please look for that sign-on letter early next week. Comments are due October 31.


Nominations are now being accepted for the Friends Executive Committee. Take advantage of this opportunity to guide this national coalition and serve as a conduit between participant organizations and NCBDDD. This your chance to identify new partnerships and liaisons for you and your organization. Nomination Instructions are available on the Friends website: www.friendsofncbddd.org. The nomination committee looks forward to hearing from you!


Saving Babies
Alcohol Use and Binge Drinking Among Women of Childbearing Age — United States, 2011–2013

CDC’s Morbidity and Mortality Weekly Report (MMWR) has published a new study looking at alcohol use among pregnant and nonpregnant women of childbearing age in the United States. According to this report, 1 in 10 pregnant women report any alcohol use and 1 in 33 report binge drinking in the past 30 days. This is important information for healthcare professionals and women of childbearing age. Healthcare professionals who provide primary care to women of childbearing age should inform women that there is no known safe amount, no safe time, and no safe type of alcohol use among women who are pregnant or might be pregnant. In addition, healthcare professionals can also implement alcohol screening and brief intervention in their primary care practices. The study uses data from the 2011-2013 Behavioral Risk Factor Surveillance System (BRFSS), a state-based, landline and cellphone survey of the U.S. population. Data were analyzed for women aged 18-44 years in all 50 states and the District of Columbia. A summary of the key findings from this paper is found here.

2015 INEBRIA Conference

Photo caption: Researchers presented current findings on alcohol SBI among women and girlsSeveral members of NCBDDD’s Fetal Alcohol Syndrome Prevention Team and partners attended and presented at the 12th Annual Conference of INEBRIA (International Network of Brief Interventions for Alcohol & Other Drugs), September 23-25, in Atlanta, GA. INEBRIA connects US researchers with leading alcohol screening and brief intervention (SBI) researchers from around the world to discuss current critical issues related to alcohol SBI research. The theme of this year’s meeting, “Interprofessional Involvement in Screening and Brief Intervention,” was designed to highlight the increasing role of nurses, social workers, and other healthcare professionals in SBI dissemination and increase their involvement in 2015 INEBRIA Conference 2SBI research. Abstracts from the conference are published in Addiction Science & Clinical Practice and are available here

Photo caption top left: Researchers presented current  findings on alcohol SBI among women and girls. Photo caption bottom right: CDC partners presented their experiences implementing alcohol SBI in Alaska, Nevada, and Tennessee


protectingPeople@2x_background Protecting People
World Thrombosis Day 2015

World Thrombosis Day LogoBlood clots affect up to 900,000 people in the United States each year. World Thrombosis Day (WTD), observed on October 13, places a global spotlight on thrombosis (the medical term for blood clots) as an urgent and growing health problem. This year’s WTD focused on healthcare-associated blood clots, which is a leading cause of preventable hospital death in the United States, and costs up to $5 billion per year. Read more…


helpingChildren@2x_bacgroundHelping Children
NCBDDD’s Learn the Signs Act Early Team Releases Free Training

The Journal of Developmental and Behavioral Pediatrics has published a research study looking at the approach of the Learn the Signs. Act Early. campaign, which encourages parents of young children to track their child’s developmental milestones and to act early if they have concerns about their child’s development. Read more…


Early Hearing and Detection Intervention (EHDI) Website Updates:

Recently, EHDI has made several updates to the website.  The annual data page has been reorganized into a tabular format so it is easier to view.  On the homepage, we have linked Georgina Peacock’s Medscape video that discusses the ‘1-3-6’ approach to help close the gap for infants who fail their hearing screening.  The running features highlight a newly released MMWR article “Progress in Identifying Infants with Hearing Loss” and the newly released Spanish-Language video. In this culturally appropriate Spanish-language video, Latino families describe their real-life experiences when they were told that their baby did not pass the hearing screening and what they did next. Learn more here.

CDC’s Learn the Signs. Act Early. Announces New Promising Practices Collection

CDC’s Learn the Signs. Act Early. team proudly announces the launch of its Promising Practices collection. The collection showcases how partners across the country have promoted Learn the Signs. Act Early. messages and materials among families with young children and the organizations, health care professionals, and early care and education providers who serve them. The Promising Practices collection includes activities that show great promise in promoting awareness of the importance of tracking a child’s developmental milestones and acting early on concerns. Read more…


Improving Health No BackgroundImproving Health
Committing to a Happier, Healthier and More Inclusive Tomorrow

All people have the right to conditions and resources that ensure optimal health. Yet, inaccessible facilities, lack of transportation to recreation venues, absence of knowledgeable staff who know how to adapt programs and a general attitude among providers that people with disability need specialized vs. integrated services, feeds into a culture of isolation and separation.

These circumstances further expose an already vulnerable population to higher rates of obesity and health disparities. Read More…


News from NCBDDD
Executive Committee
NCBDDD’s Social Media Corner
Upcoming chats for @CDC_NCBDDD
  • Topic: Blood clots
  • Description: Participants will discuss VTE and the risk factors that can increase the chance of developing this serious medical condition.
  • Date: Tuesday, October 20, 2015
  • Time: 1:00PM ET
  • Host/Moderator: @abcDrBchat
  • To join: Follow @abcDrBchat on Twitter and use the hashtag #abcDrBchat to participate.
Upcoming chats for @CDC_NCBDDD
  • Topic: Learning Difficulties
  • Description: Participants including clinicians, researchers, bloggers, and students will learn and discuss facts and tips pertinent to learning difficulties.
  • Date: Tuesday, October 6, 2015
  • Time: 1:00PM ET
  • Host: @DrRichardBesser
  • Missed the chat? Follow @DrRichardBesser on Twitter and use the hashtag #abcDrBchat to participate.


  • Topic: World Thrombosis Day
  • Description: Medical experts, patient advocates, and healthcare organizations will discuss VTE associated with recent hospitalization and what patients and caregivers need to know to reduce risk for potentially deadly blood clots.
  • Date: Tuesday, October 13, 2015
  • Time: 12:00PM ET
  • Host: @ThombosisDay, @ISTH
  • Moderator: @EverydayHealth (Jennifer Brown, PhD, Everyday Health Editor)
  • Missed the chat? Follow @ThrombosisDay on Twitter and use the hashtag #ClotChat to participate!
How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK


Submit Here
button to submit articles to AUCD 360 form News items may be submitted for consideration via email to acostalas@aucd.org. Send in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 11/9/2015. Photos and web links are encouraged!!

AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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