November 2017

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News from Executive Committee
Saving Babies
Helping Children
Protecting People
Improving Health
News from NCBDDD
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News from Executive Committee
Dear Friends of NCBDDD,

Happy fall! We hope you’re enjoying the cooler weather and getting geared up for Halloween.

As we head into the final months of 2017, the Executive Committee is preparing for the year ahead. Most importantly, we are now accepting nominations for the Friends of NCBDDD Executive Committee. We hope you’ll consider serving! The Executive Committee is a fantastic way to make new connections, enhance relationships with NCBDDD staff, and advance the work of the Friends. Additional information can be found below. The deadline for nominations has been extended to next Friday, October 27th at COB.

In other news, we had a wonderful quarterly webinar in September. A big thanks for all who were able to join. If you missed it, be sure to check-out the recorded session (details below). The Executive Committee is also working with NCBDDD to gather partner spotlight stories for the Center’s soon-to-be-released 2017 annual report. This is a great opportunity to showcase the impactful work of your organization. You can learn more about submitting a storying below.

Finally, be on the lookout in the near future for a save-the-date for our winter in-person meeting. Hint: we’re aiming for February and it’s going to be a great event!

Please reach out with any questions or suggestions. I always appreciate hearing from you.

Becky Abbott
Chair, Friends of NCBDDD

Friends of NCBDDD Elections Process

Please cast your vote for the new Friends of NCBDDD Executive Committee members. You will be voting for the Chair position, Vice Chair position, and two Member at Large positions (Term: January 1, 2018 – December 31, 2019). For more information about the nominees, please see their bios and statements. 



Saving Babies

Need Continuing Education Credits? Check Out “Stop the Clot: What Every Healthcare Professional Should Know”

AdobeStock_75929267-300x200The National Blood Clot Alliance (NBCA) and the Centers for Disease Control and Prevention (CDC) provide a web-based online curriculum entitled “Stop the Clot™: What Every Healthcare Professional Should Know.” This online curriculum on venous thromboembolism (VTE) provides no-cost contact hours for healthcare professionals and pharmacists. Read more…


Protecting People background imageProtecting People
CDC’s New Milestone Tracker: There’s an App for That!

Please join the Act Early Fall webinar on Wednesday, November 29 from 3p-4p ET, for an overview of CDC’s FREE, new Milestone Tracker app. During this webinar participants will learn more about the app’s unique features, receive tips on how to use the app to boost family engagement around developmental monitoring and screening, and get ideas for how to help promote the app in their communities. CDC developed the Milestone Tracker app to offer a fun and easy way to engage parents and other care providers in the important activity of monitoring children’s early development. To actively participate, please download the app by searching for “CDC’s Milestone Tracker on Google Play or the App Store in advance of the webinar. Register 

ACHA St. Louis Regional Conference

Saturday, December 2, 2017, St. Louis, MO 63110

This St. Louis Regional Conference is a dynamic partnership between the Adult Congenital Heart Association and the Washington University Adult Congenital Heart Disease Program. We invite you, your family and friends to learn about specialized lifelong care for adults with congenital heart disease (ACHD) and to connect with the ACHD community. You will have the opportunity to listen and learn from experts in ACHD. Event Flyer / Register

Surviving the Emergency Department as an Adult with Congenital Heart Disease

Wednesday, December 6, 2017, 7:00 p.m. – 8:00 p.m. ET 

As an adult with congenital heart disease (ACHD), have you ever been to the Emergency Department (ED) with either a cardiac or non-cardiac problem? Did you feel like you no one listened to you, cared about you or believed you? Did the ED doctor refuse to contact your ACHD doctor? Having a medical emergency is a scary experience. When you have CHD, it can even be more frightening and frustrating. You don’t want to miss this webinar. Register today to learn about common issues and barriers. Examples will also be given to help you prepare for your ED visit, advocate for your care, and communicate with ED staff.  Event Flyer / Register


Webinar Archive: Managing Venous Thromboembolism in the Emergency Department

NBCA hosted a webinar for the Centers for Disease Control and Prevention (CDC), Division of Blood Disorders, on Thursday, November 9, 2017. This online talk, entitled “Managing Venous Thromboembolism in the Emergency Department,” was presented by NBCA Medical & Scientific Board member Jeffrey Kline, MD, who is Professor and Vice Chair of Research in the Department of Emergency Medicine, and Professor of Integrative and Regulatory Physiology, Indiana University School of Medicine. View Webinar

helpingChildren@2x_bacgroundHelping Children
Publication: A National Description of Treatment among United States Children and Adolescents with Attention-Deficit/Hyperactivity Disorder

In a recent publication, CDC scientists show that only 1 in 3 families report ever receiving the recommended parent training in behavior therapy to help manage their child’s attention deficit/hyperactivity disorder (ADHD), and children aged 4-17 most commonly received medication. Nearly 1 million school-aged children with ADHD could have benefited from parent-delivered behavior therapy, but did not receive this treatment. Visit CDC’s website for more information about this publication and our work on ADHD.

Improving Health No BackgroundImproving Health

Archived Webinar: Including People with Disabilities: Public Health Workforce Competencies

This webinar is a recording of a recent brown bag colloquium with Dr. Adriane Griffen from the Association of University Centers on Disability (AUCD) on how public health can improve the health, employment and participation of people with disabilities. More information on the Including People with Disabilities: Public Health Workforce Competencies may be found at Hosted by: University of Montana Rural Institute for Inclusive communities, with the Montana Disability and Health Program. View Webinar

News from NCBDDD
Guide to Community Preventive Services and Disability Inclusion

NCBDDD Partner Alerts have transitioned to GovDelivery, an electronic communication technology that provides its services to over 1,800 government organizations in Europe and in the United States. By using GovDelivery to distribute NCBDDD Partner Alerts, NCBDDD will use the platform in an effort to better engage with you, our valued partners, as well as keep you well informed on Center activities. Haven’t subscribed yet? Simply click here. When the new window opens, enter your email address, and click “submit”. When the above process is complete, you are subscribed for future NCBDDD Partner Alerts delivered via GovDelivery!

Social Media Corner


Please Add NCBDDD Connect Badge to Your E-mail Signature:
  1. Open Microsoft Outlook
  2. Go to File > Options > Mail > Signatures
  3. Right click the graphic below and select “copy”
  4. Paste the graphic into your desired signature in the “Edit signature” field
  5. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure is listed in the URL box and hit OK


Submit Here
Do you have an update or event you would like to share with the Friends of NCBDDD? Newsletter items may be submitted for consideration via email to Send updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 12/10/2017. Photos and web links are encouraged!!


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The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.


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