November 2016

♦ News from NCBDDD Executive Committee

♦ Saving Babies

♦ Helping Children

♦ Protecting People

♦ Improving Health

♦ News from NCBDDD

♦ Connect with Us

♦ Submit Here

News from NCBDDD Executive Committee
Meet the New Executive Committee Members

Please join the us in congratulating the newly elected  2017 Executive Committee members! We look forward to working with you! Read more
Full Executive Committee Roster

  • Rebecca Abbott (Chair)
    March of Dimes
  • Sara Struwe (Vice-Chair Elect)
    Spina Bifida Association
  • Jane Correia (Member at Large)
    National Birth Defects Prevention Network
  • Daniel Crimmins (Member at Large)
    George State University
Friends of NCBDDD In-Person Meeting at AUCD2016

Register_ButtonDecember 7, 2016 | 1pm-5:00pm
The Renaissance Washington, DC Downtown Hotel
Ninth Street, NW, Washington, DC, 20001
Volunteers are need join the planning committee.

Communications Committee Update


Did you know that if you are a member of the Friends of NCBDDD that you can use the listserv to disseminate information to the group?

If you have an urgent request for the group, or want to share important information, feel free to use the listserv.

As always, you can contact the Chair, Vice-Chair, or Communications Chair with requests to disseminate information, but you don’t have to wait… Feel free to send out information on your own. Listserv address:

Saving Babies
NCBDDD Attends the American Academy of Pediatrics (AAP) Conference

aapThe American Academy of Pediatrics (AAP) Conference occurred in late October in San Francisco, CA, and DHDD was represented in a great way! In addition to multiple poster displays, Dr. Eric Dziuban (CMO and leading Children’s Preparedness Unit) gave a well-received plenary and Q&A session entitled “Preparing for Emerging Infectious Disease Outbreaks: Zika and More”. Georgina also presented a report on Center activities over the past six months to the Committee on Children with Disabilities.


Position Announcement: Title V CYSHCN Director

Oregon is hiring a Title V CYSHCN Director. This position is located at the Oregon Center for Children and Youth with Special Health Needs at Oregon Health & Science University in the Institute on Development & Disability (IDD). The position (IRC53555) with further details is posted to OHSU’s job website. Read more…

Protecting People
AAP Family Readiness Kit

AAP Family Readiness Kit The AAP Family Readiness Kit was revised to help families get disaster-ready. Simple steps to help families build a kit, make a plan, be informed, and get involved are included. The kit was funded in part by the Health Resources and Services Administration of the HHS Health Resources and Services, Emergency Medical Services for Children (EMSC) Program.

A team of subject matter experts assisted with the development of the kit. Deanna Dahl-Grove, MD, FAAP, and Sarita Chung, MD, FAAP, served as the lead editors. Steven Krug, MD, FAAP, and Deborah Mulligan, MD, FACEP, FAAP, were guest editors. Dr Mulligan is credited for her vision and leadership in development of the original kit. A team of authors developed specific content for the revised kit, including: Brent Daniel Kaziny, MD FAAP; Christopher S. Kennedy, MD; Kathy Lehman-Huskamp, MD, FAAP; Marie Lozon, MD, FAAP; and Nathan Timm, MD, FAAP. For more information, e-mail

Congratulations, Dr. Vince Campbell

willi-horner-johnson-recognizes-vince-campbellDr. Vince Campbell, now retired, served as DHDD’s Disability and Health Officer for several years. He won APHA’s (American Public Health Association) Lifetime Achievement Award at their annual meeting this week (Oct. 29-Nov. 2). Congratulations Vince!


helpingChildren@2x_bacgroundHelping Children
Medicaid Managed Care: Challenges and Opportunities for Pediatric Medical Home Implementation and CYSHCN

The National Center for Medical Home Implementation, in collaboration with the National Academy for State Health Policy, created a fact sheet that discusses challenges and opportunities to provision of care for children and youth with special health care needs (CYSHCN) enrolled in Medicaid managed care. The fact sheet identifies states that leverage Medicaid managed care to advance the pediatric medical home model through payment incentives, technical assistance, and care coordination services. Read more…

Newborn Hearing Screening Discussions

In October, members of the DHDD OD and Child Development and Disability branch attended a meeting in Washington DC with staff from the HRSA/MCHB Division of Services for Children with Special Healthcare Needs and NIH National Institute on Deafness and Other Communication Disorders. The purpose of this meeting was to review and discuss present and future collaborations related to newborn hearing screening and follow-up.


Improving Health No BackgroundImproving Health
ACHA Webinar: Living Well with Pulmonary Arterial Hypertension

achaMonday, November 28, 2016
7:00 p.m. – 8:00 p.m. ET

Do you or a loved one have pulmonary arterial hypertension (PAH) or high blood pressure in your lungs? If so, you don’t want to miss this webinar. Register today to hear Dr. Jamil Aboulhosn, ACHD cardiologist tell you why it occurs, what the consequences are, and what treatment options are available. Attend the webinar and learn how to live your life to the fullest. Webinar Flyer

NCBDDD Hosts National Disability Employment Awareness Month Webinar

NCBDDD Hosts National Disability Employment Awareness Month WebinarTo celebrate National Disability Employment Awareness Month this October, DHDD hosted a webinar with AUCD and CDC’s OEEO on October 19 which included a panel of 5 disability experts in public health, academia, and employers, including DHDD’s Director Georgina Peacock. They each shared a different perspective as to why disability inclusion in the workplace is so important for both businesses and the employees. Georgina also shared the newest employment data for people with disabilities that we published in a recent MMWR on the topic. They also encouraged our society to recognize the skills and talents that workers with disabilities bring to our workplaces and how innovations in business and health can enhance these contributions. The theme of the event was “Inclusion Works” (#Inclusionworks).

Health Promotion and Women Living with a Disability

webinar-thumbOctober was Breast Cancer Awareness Month, a perfect time to learn more about the importance of reducing barriers to health promotion for women living with a disability. This webinar participants learned  about great resources offered by the FDA Office of Women’s Health and their Pink Ribbon Sunday Program, the Friends of NCBDDD focus area of “Improving Health of People with Disabilities,” the American Association on Health and Disability, breast health awareness resources, the National Breast Health Coalition for Women with Disabilities and the Association of University Centers on Disabilities Public Health is for Everyone resources. Read more…


News from NCBDDD
Executive Committee
Executive Committee Meeting Minutes
How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure is listed in the URL box and hit OK


Submit Here
News items may be submitted for consideration via email to Send in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 12/9/2016. Photos and web links are encouraged!!


  • AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910
  • The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.
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