April 2011

News from the Friends of NCBDDD

CDC Director Announces Selection of Dr. Coleen Boyle to Lead NCBDDD

In a letter to partners, Dr. Thomas Friedan, Director of CDC writes:
“I am pleased to announce my selection of Coleen A. Boyle, Ph.D., M.S. (hyg.), director of the National Center on Birth Defects and Developmental Disabilities (NCBDDD), effective immediately.  Coleen began her career at CDC in 1984, working on a large multifaceted project to examine the impact of Agent Orange exposure on U.S. military personnel who served in Vietnam.  She joined the Division of Birth Defects and Developmental Disabilities in 1988. Coleen received the CDC Charles C. Shepard Award for scientific excellence in 1997.  In 2001, Coleen was named the associate director for science and public health for the newly created National Center on Birth Defects and Developmental Disabilities (NCBDDD).  In that role, she was responsible for developing and coordinating the science activities of the National Center. In September 2010, she became acting director of NCBDDD. In her acting capacity, Coleen led the finalization of the center’s five-year strategic plan.  Coleen’s educational achievements include an M.S. (hyg.) in biostatistics and Ph.D. in epidemiology from the University of Pittsburgh School of Public Health. She completed postdoctoral training in epidemiologic methods at Yale University.  Prior to joining CDC, Coleen served as a faculty member in epidemiology at the University of Massachusetts Program in Public Health.  Please join me in congratulating Coleen and supporting her in this very important leadership role.”
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NCBDDD’s 10 Years of Service Event Focuses on Autism

In recognition of Autism Awareness Month, NCBDDD, the Autism Society and Autism Speaks are hosting a program, “Autism Spectrum Disorders: Understanding an Urgent Public Health Concern,” at the Children’s Specialized Hospital in New Brunswick, NJ, on Friday, April 29, 9-11:30 am. The program will cover important topics such as understanding the science and public health approach for autism spectrum disorders (ASD); hearing from state and community leaders about the current challenges and needs of the autism community; and the impact of ASD on families.  Speakers include Dr. Coleen Boyle (NCBDDD Director),  Mary O’Dowd (Commissioner of NJ Department of Health and Senior Services), Gary Weitzen (Executive Director, NJ Parents of Autistic Children), Dr. Linda Meyer (Executive Director ,Autism New Jersey), Peter Bell (Executive Vice President, Autism Speaks), and Jeff Sell (Vice President, Autism Society of America). In addition, Senator Robert Menendez, Representative Frank Pallone, Jr., and Representative Chris Smith, have been invited to share their perspective with the audience as well.  Both in-person and conference-call attendance options are available, but space is limited. Registration will be accepted on a first come, first served basis at: http://www.surveymonkey.com/s/04292011.

News from the Friends of NCBDDD Advocacy Coalition

Friends Advocacy Coalition Submits Statement to House Appropriations Committee

On April 15, the Friends Advocacy Coalition submitted testimony for the record to the House Committee on Appropriations.  In this statement The Friends of NCBDDD Advocacy Coalition recommends that Congress provide at least $144 million in FY 2012 to sustain the vital programs and activities funded by NCBDDD.  The Coalition also calls on Congress to ensure any program modifications do no harm for children and adults currently served by the Center and that funds intended to directly benefit the targeted populations not be diverted.  Please visit the homepage of www.friendsofncbddd.org to view the full statement.

News from our Partners

National Birth Defects Prevention Network Updates

NBDPN’s new strategic plan for years 2011-2015 was unveiled at the 14th annual meeting of the NBDPN in late February.  The next NBDPN newsletter will contain further details and instructions on how to obtain materials from the meeting for those unable to attend the meeting or particular meeting sessions.

For the second year in a row, the NBDPN has collaborated with staff from the Journal of Registry Management to produce a birth defects themed issue due for release in the spring of 2011. For now you can view last year’s issue

The NBDPN will publish its thirteenth national report on birth defects surveillance and prevention in 2011 in the December issue of Birth Defects Research Part A.  The deadline for submission of manuscripts is May 2, 2011.  Please see the call for manuscripts and guidelines for more information.

Earth Day: An Opportunity to Look at the Linkage Between Environmental Health and Birth Defects and Developmental Disabilities

Earth Day will be celebrated Friday, April 22nd this year. For public health practitioners, Earth Day provides an opportunity to look at the link between environmental health and birth defects and developmental disabilities. For those looking to learn more about this connection, CDC’s National Environmental Public Health Tracking Network provides data and information linking environmental public health hazards on birth defects, reproductive and birth outcomes, and childhood lead poisoning at the local, state, and national levels. 

CHADD National Resource Center “Ask the Expert” Chat Series

The National Resource Center, a project of Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD), hosts monthly chats which provide the opportunity to ask questions of leading experts on ADHD.  Our next chat on When Traditional College is Not the Answer: Other Avenues for Young Adults will be Thursday, May 26th (3:30-5:00 PM EST) with Arlyn Roffman, PhD. The transcript for our recent chat, Parenting When the Parent has ADHD with Patricia Quinn, MD. The transcript for our recent chat, is available now, along with transcripts from all previous chats. For information on future chats, see our chat schedule. 
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Vascular Disease Foundation Call for Nominations for Research Awards

Deadline for Nominations: April 30, 2011
The Vascular Disease Foundation (VDF) is seeking nominations for research awards through its Peripheral Arterial Disease (PAD) and Venous Disease Coalitions. Research awards recognize the important research relevant to the understanding and/or treatment of arterial and venous diseases. VDF seeks to identify exceptional contributions to research. Nominations of studies published in 2010 in peer-reviewed medical literature are being sought. These annual awards consist of a plaque and $1,000 check and are presented each year at VDF’s annual meeting in September.  To nominate a study, please submit a description (150-300 words) of the features that make the research meritorious, a copy of the article and lead author contact information to info@vdf.org
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NACCHO Grant Opportunity: Healthy Living Promotion for People with Disabilities

Applications Due: May 16, 2011
In the midst of a national obesity epidemic, people with disabilities are significantly more likely to be obese than their non-disabled peers. People with disabilities face unique challenges to maintaining a healthy weight, including physical limitations, inaccessible fitness activities and limited healthy eating choices and exercise options. NACCHO’s Health and Disability Project invites local health departments, partnered with local stakeholder organizations, to apply for two new grant opportunities. Both grants focus on healthy living promotion for people with disabilities. Share this with your local health department, and partner with us to improve the health and wellness of people with disabilities in your community.
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AAHD Updates

The AAHD Health Promotion Resource Center (HPRC) is a free clearinghouse of contemporary scientific, policy and educational information on disability and health.  The HPRC has added new Fact Sheets, Research Abstracts, and Best Practices to the HPRC during the last month.  The new fact sheets are on the following topics:  Obesity and Disability; Health Screening and People with Disabilities; Health Disparities and People with Disabilities; and Health Promotion and Wellness for People with Disabilities.  Three new Research Abstracts were also added to the HPRC on Social Participation, Community Integration and Social Determinants of Health and two new Best Practices were added on Social Participation and Community Integration.  Please visit http://aahd.us/page.php?pname=health  or www.aahd.us and visit the Health Promotion Resource Center and feel free to share these documents with you colleagues. 

The April issue of the Disability and Health Journal (DHJO) is available on line at www.disabilityandhealthjnl.com.  To receive a hard copy of the DHJO, please visit www.aahd.us/membership and join AAHD and receive the DHJO at a substantial discount.

National Limb Loss Awareness Month Raises the Question: Are You at Risk?

Each day 507 people lose a limb, largely to vascular-related diseases, and 60 percent are preventable. The Amputee Coalition, a national nonprofit based in Knoxville, Tennessee, is on a mission to increase awareness about limb loss prevention and about those living with limb loss.  “Limb loss is not uncommon and, sadly, becoming less uncommon every day,” said Kendra Calhoun, Amputee Coalition president and CEO. “More than 2 million Americans live with limb loss and that number grows by 185,000 each year. Our goals for Limb Loss Awareness Month are to heighten public awareness about limb loss and increase people’s understanding of prevention – especially those most at risk.” The Amputee Coalition is sponsoring a nationwide awareness campaign with April as Limb Loss Awareness Month and offering an online risk assessment for limb loss.
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Partner Conferences

Autism Society National Conference & Exposition
July 6-9, 2011
Orlando, Florida

National Marfan Foundation Annual Conference
July 14-17, 2011
Portland, Oregon

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