March 2017

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News from Executive Committee

Saving Babies

Helping Children

Protecting People

Improving Health

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News from Executive Committee
Join us for our first Quarterly Check-In of the year: So You Think You Know NCBDDD?

events-page_webinar-iconThursday, March 23, 2017, 3:00 p.m. – 4:00 p.m. ET

Featuring updates from Stephanie Dulin, NCBDDD Deputy Director, and members of the Friends of NCBDDD Executive Committee.  Register Here

Saving Babies
CDCs Acting Director’s Editorial on Preventing Fetal Alcohol Spectrum Disorder (FASD)

AAFP-capital-RGB@2Please check out the editorial by CDC’ Acting Director Dr. Anne Schuchat,The CDC’s Recommendations to Help Prevent Fetal Alcohol Spectrum Disorder (FASD)” in American Family Physician, a journal of the American Academy of Family Physicians.

Research Grants & Scholarships: Now Available from CNF

CNFThe Child Neurology Foundation (CNF) has awarded over $3.5 million to research aimed at identifying treatments and cures for pediatric neurologic diseases. These 2017 opportunities are now available:

  •  CNF Neurodevelopmental Disabilities (NDD) Summer Research Scholarship supports 1 summer clinical research scholarship for a 1st or 2nd year medical student who has an interest in training as a child neurologist. The selected applicant will receive a $3,500 scholarship. Due: April 1.
  • Child Neurology Shields Research Grant supports translational or clinical research by a child neurologist or developmental pediatrician early in his/her academic career. The selected investigator will receive a $100,000 grant of $50,000/year for 2 years. Due: April 15.

Sign up with CNF to receive more information about these and future opportunities. Contact CNF with any questions.

Protecting People background imageProtecting People
 Blood Clot Awareness Month 

bloodclots.pngIn recognition of Blood Clot Awareness Month in March, the National Blood Clot Alliance is orchestrating a Know More, Share More social media campaign, amplifying key information and facts about the risk factors and signs and symptoms of dangerous blood clots, and encouraging widespread social sharing. Toward that end, the organization also has a Thunderclap group message planned for March 24th at noon, and you can join the effort here

helpingChildren@2x_bacgroundHelping Children
Congressional Briefing on Covering Children with Pre-existing Conditions

Hidden BurdensMarch 21, 2017 from 12:00 p.m. to 1:00 p.m. ET
US Capital Visitors Center, Room S-217, Washington, DC

Join the American Heart Association, March of Dimes, International Alliance for Pediatric Stroke, Pediatric Congenital Heart Association and the Cystic Fibrosis Foundation to learn about the special challenges of covering children with pre-existing conditions and the considerations around cost, benefits, provider networks, and other issues that must be addressed if these children are to reach their full potential. Please RSVP to Cindy Salinas, cindy.salinas@heart.org. **Lunch will be served.** Breifing Invitation

Congressional Children’s Luncheon Briefing on Tourette Syndrome

TAAIn early March, Georgina Peacock (DHDD Director) had the privilege of presenting at the Congressional Children’s Luncheon Briefing on Tourette Syndrome  hosted by the Tourette Association of America (TAA) in Washington DC. Two Youth Ambassadors from TAA shared their powerful stories, and Georgina spoke of the work CDC does to give people with Tourette Syndrome the opportunities to thrive.

Research Grants & Scholarships: Now Available from CNF
Cookbook for Busy Minds

cookbootThe National Resource Center n ADHD at CHADD has produced a cookbook that includes quick, simple, and easy recipes as well as healthy food choices for people affected by ADHD.  Find meal planning strategies and recipes for delicious breakfasts, snacks or dinners in this Cookbook for Busy Minds: Simple, Easy & Healthy Meals to Feed Your Brain.

New Factsheet:  Understanding Research Studies

NADHDThe NRC has also produced a new factsheet titled Understanding Research Studies to help the public evaluate media reports of research on new or emerging treatments for ADHD.  The factsheet discusses the different types of research studies, who conducts them and pays for them, the quality of the journals in which studies appear, the selection of study participants as well as the number of participants,  and the length and conclusions of studies.

2017 Young Scientist Research Awards applications now available!

chaddCHADD is now accepting applications for its 2017 Young Scientist Research Awards.  Application forms are available online at http://www.chadd.org/YoungScientist.aspx. Through the program, CHADD supports researchers with:

  • an unrestricted cash award of $1,000 each
  • recognition in CHADD’s Attention magazine with a bio and summary of research submission
  • recognition at CHADD’s Annual International Conference
  • an allowance to cover most conference related expenses (travel, hotel, registration)
  • a one-year CHADD professional membership
  • publicity through CHADD’s social media posts and its ADHD Weekly E-newsletter
  • a description of the scientist’s bio and research on the CHADD website

Applicants must be in the process of completing a doctoral degree, or must have completed such a degree within the last three years with the doctoral degree awarded no earlier than January 2014. Research may address any area relevant to ADHD, including, but not limited to: biological/genetic underpinnings of the disorder; treatment efficacy; impact on the individual or family; school or workplace accommodations; social stigma and discrimination; public health; and epidemiology.

Two researchers will be selected for the Award in 2017. Deadline for applications is May 15, 2017.

Improving Health No BackgroundImproving Health
 CDC’s Rural health MMWR Series

1280px-US_CDC_logo.svg.pngMembers of DHDD’s Child Development Studies team published an article in CDC’s rural health MMWR series that looks at the needs of children in rural areas with mental, behavioral, and developmental disorders. Researchers collected information from parents on children’s mental health in both urban and rural areas. Parents were asked questions about their child’s mental health, their own mental health, their neighborhood, and other personal and community factors. Parents of children with mental, behavioral, and developmental disorders in rural areas (isolated, small rural, and large rural areas combined) face personal, financial, and neighborhood challenges more often than families of children without these disorders.
Learn ways to support these families here.

ACHA Webinar Presents: Life After the Fontan

achaWednesday, March 29, 2017, 7:00 p.m. – 8:00 p.m. ET

If you are an adult who has a Fontan, you definitely want to attend this webinar. Dr. Ali Zaidi, noted ACHD cardiologist, will talk about living life fully after the Fontan. At the same time, you will learn how to be aware of possible complications.  Specific topics to be discussed are anticoagulation, liver status and pregnancy.  This is a webinar you don’t want to miss.  Register today / Webinar Flyer

News from NCBDDD
Social Media Corner
Please Add NCBDDD Connect Badge to Your E-mail Signature:
  1. Open Microsoft Outlook
  2. Go to File > Options > Mail > Signatures
  3. Right click the graphic below and select “copy”
  4. Paste the graphic into your desired signature in the “Edit signature” field
  5. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
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  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK

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Submit Here
Do you have an update or event you would like to share with the Friends of NCBDDD? Newsletter items may be submitted for consideration via email to acostalas@aucd.org. Send updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 4/10/2017. Photos and web links are encouraged!!

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The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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