March 2012

In This Issue

A Note from the Director of NCBDDD

New Associate Director for Policy, Planning and Evaluation at NCBDDD

News from our Partners
The American Foundation for the Blind Unveils Enhanced Website Redesign

National Limb Loss Awareness Month: Are You at Risk?

Time Out for Genetics: A New Webinar Series Offered by The Genetics in Primary Care Institute

Award, Scholarship & Funding Opportunities

ADHD Research Award Program
Apply Now!

2012-2013 Christina Skoski, M.D., Scholarship
Apply Now!

FOA: “Coordinating Center for
Research and Training to
Promote the Health of People
with Developmental and
Other Disabilities”
For more information, click here!

Upcoming Conferences

Limb Loss Education Day
April 21, 2012
Gwinnett County Fairgrounds
Atlanta, GA

2012 Disability Policy Seminar
April 23-25, 2012
Grand Hyatt Washington
Washington, DC

2012 U.S. Olympic Committee
Paralympic Leadership Conference

April 27-30, 2012
U.S. Olympic Training Center
Colorado Springs, CO

2012 AFB Leadership Conference
May 4-5, 2012
Tradewinds Resort
St. Pete Beach, FL

2012 International Conference on
Stillbirth, SIDS and Infant Survival

October 5-7, 2012
Baltimore Marriott Waterfront
Baltimore, MD
*Call for Abstracts
Deadline: March 31, 11:59 p.m.

Upcoming Webinars

Time Out for Genetics:
A Webinar Series

Offered by The Genetics in
Primary Care Institute

Recent Webinars

Introduction to Disability and
Health Data System

Navigating Disability and
Health Data System

Visit to learn
more about the Disability and
Health Data System!

Calling for News from
NCBDDD Partners!

We welcome you to send in your
updates on conferences, meetings, special awards, and journal or
research announcements for the
next edition of the Friends
of NCBDDD E-Newsletter. Please
submit program highlights with a short summary of approximately 150-200
words to Tory Christensen by
April 13, 2012. Photos and
web links are encouraged!



Join the Friends of
NCBDDD Listserv

A Note from the Director of NCBDDD

Coleen A. Boyle, PhD, MS Hyg Director, NCBDDD

Greetings and Happy Spring!

I’m pleased to share highlights from our recent 2nd National Conference on Blood Disorders in Public Health, which concluded on March 14, 2012, in Atlanta. The conference was highly successful and I was privileged to meet with more than 400 other public health professionals from around the country to address the nation’s top public health challenges in blood disorders. The theme was From Outcomes to Impact: Addressing Translational Blocks to Improving the Public’s Health—Disseminating and Improving the Adoption of Effective Preventive Measures and Therapeutic Interventions. The purposes were to continue goals established during the first conference that was held in March 2010, and to promote evidenced-based public health functions that will improve the health of people with blood disorders. We held the conference in conjunction with the Conference of the Global Sickle Cell Disease Network (March 14–15, 2012) and the 2nd Meeting of the Worldwide Initiative on Social Studies on Hemoglobinopathies (March 16, 2012).

I was incredibly warmed to see so many public health professionals together sharing the latest research, building new partnerships, and addressing a broad range of significant blood disorder issues.The 3-day agenda was complete with 30 scientific sessions and workshops, 20 scientific posters, and a thought-provoking film festival highlighting family stories, comprehensive care, and issues surrounding treatment costs.We also took the time to acknowledge the hard work of those in the field with the following awards:

  • Dr. Andra James—Outstanding Leadership in Public Health Practice
  • Dr. James Eckman—Effective Practice in the Service of Individuals With Blood Disorders
  • Dr. Kathleen Johnson—Best poster: Burden of Illness: Direct and Indirect Costs Among Persons With Hemophilia A

The conference concluded with a plenary session on workforce development and the challenges related to recruiting and retaining people in the field of hematology.

I think this conference made it clear that all of us are working hard on the issues of blood disorders, and I’m glad we all are dedicated in working to address the challenges ahead. Please feel free to visit the conference website to learn more:


Coleen A. Boyle, PhD, MS Hyg

Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention

NCBDDD Announces New Associate Director for Policy, Planning and Evaluation

NCBDDD welcomes Salvatore Lucido into new role

Salvatore “Sal” Lucido, JD, MPA has accepted the position as Associate Director for Policy, Planning and Evaluation for the National Center on Birth Defects and Developmental Disabilities (NCBDDD). Sal has been acting in this role for 18 months and prior to that, he served as NCBDDD’s deputy policy director.

Sal has extensive public health policy experience. He began his career at CDC in 1991 as a Presidential Management Intern with CDC’s Office on Smoking and Health. In 1995, he joined the Office of Program, Planning and Evaluation in CDC’s National Center on Chronic Disease Prevention and Health Promotion where he worked a policy analyst on a variety of issues including cancer screening, obesity, cardiovascular screening, infant health, and aging. After a brief stint as CDC’s Privacy Rule Coordinator, Sal joined CDC’s Office of the Director, Division for Issues Management and Executive Secretariat as a Senior Policy Analyst and Team Leader.

Sal graduated Magna Cum Laude from Stonehill College in 1989 with a Bachelor of Arts in Political Science. In 1991, he earned a Master of Public Administration degree from the George Washington University and was accepted into the Presidential Management Internship (PMI) Program. In December 2003, Sal graduated Cum Laude from the Georgia State University College of Law and in May 2004, he successfully passed the Georgia Bar Examination and became an active member of the State Bar of Georgia.

News from our Partners

The American Foundation for the Blind Unveils Enhanced Website Redesign

The American Foundation for the Blind (AFB), the national nonprofit that expands possibilities for people with vision loss, launched a redesign of its main website,, early this month. The new design offers a more interactive, engaging experience, making it easier for visitors to locate information on everything from accessible technology to raising a child with visual impairments to webinars on the latest research in the blindness field.
Like the former AFB website, the new website is fully accessible to people with vision loss. Visitors can change colors, font, and font size to increase content readability or use a screen reader to access every bit of content on our pages.
On the new site, visitors will find:
• Improved navigability via a cleaner design, more dynamic content, and a new information architecture
• Slideshows that highlight news, events, and resources on living with vision loss
• New and enhanced ways to engage with AFB through public policy campaigns and various social networking channels, including blogs and message boards
• Robust and dynamic landing pages for key programs, including the AFB Center on Vision Loss and AFB Press
• The ability to easily share content by e-mail, Facebook, or Twitter
• A vibrant and supportive community on AFB’s award-winning family of websites, including VisionAware, FamilyConnect, and CareerConnect
• In-depth descriptions of more than 1,600 agencies and organizations that offer services to people with vision loss, available for free for the first time through AFB’s Directory of Services online

National Limb Loss Awareness Month: Are You at Risk?

The Amputee Coalition has asked President Obama to declare April as Limb Loss Awareness Month. In 2011, 36 governors issued proclamations declaring April as Limb Loss Awareness Month in their states. Requesting the presidential proclamation, the Amputee Coalition informed President Obama: “With over 28 million Americans living with diabetes, and with diabetes and peripheral vascular disease being the leading causes of limb loss, this is a significant public health concern.”

Limb Loss Awareness Month designates a specific time to:

• Provide support for individuals within the limb loss community
• Raise public awareness about limb loss education; provide education and prevention information to both the limb loss community and the rest of the population
• Provide an opportunity for individuals to discuss quality of life and other issues they face with the public, legislators and the media
• Recognize the contributions of military veteran amputees.

The Amputee Coalition’s 2012 campaign theme is, “Take a Seat; Check Your Feet.” It encourages people with diabetes to visit their doctors for a foot check. Foot ulcers often result in amputation if they are not cared for properly. The introduction of comprehensive foot care, including regular visits with a podiatrist, has been associated with reducing diabetes-related amputations by up to 80 percent.

Take an online risk assessment for limb loss!

Upcoming Webinars

Time Out for Genetics: A New Webinar Series Offered by The Genetics in Primary Care Institute

The Genetics in Primary Care Institute, a cooperative agreement between the AAP and the Maternal and Child Health Bureau, is now offering Time Out for Genetics, an educational webinar series. Each month, a webinar will be presented by recognized experts with the overarching goal of educating participants about the value of incorporating genetic medicine into primary care. Participants will be provided with practical take-home messages. Faculty will provide an overview of the particular topic, explain the relevance to primary care, and discuss a few case examples of how the topic can be integrated into everyday practice settings.

The 10-part series began in March 2012 and continues through December 2012. All webinars will be 30 minutes in length and, with a few exceptions, will take place on the last Thursday of the month at 12 pm Central Time. The webinars target a wide audience including pediatricians, family physicians, nurse practitioners, and other stakeholders. For more information on the Time Out for Genetics webinar series, please visit click here.

The next webinar will be: Building an Accurate Family History, Constructing a Pedigree — An Overview for Primary Care. It will take place on Thursday, April 26 from 12:00 p.m. until 12:30 p.m. Central Time. Click here to register!

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