June 2016

What is NCBDDD

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) strives to help people live to the fullest. Their work focuses on those that are especially vulnerable to health risks- babies, children, people with blood disorders and children and adults with disabilities. Read More…

NCBDDD Overview

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) strives to help people live to the fullest. It focuses on those that are especially vulnerable to health risks – babies, children, people with blood disorders, and children and adults with disabilities. View Friends of NCBDDD Presentation Template. Read More…

Highlights of the Communications Committee Awareness Program

The goals of the Awareness program are to:

• Increase awareness of NCBDDD at CDC and public health agencies
• Increase communication with others beyond members of the Friends
• Increase awareness of how your organization plays a role in public health
• Increase the visibility of the group, highlight programs, and to support the mission of group

As part of this awareness program, the committee has created social media and dissemination tools. Read More…

NCBDDD Communications Recruitment

We invite you and your organization to join and participate with the Friends of NCBDDD. We are a coalition of government and private sector participants who work together to enhance the mission and activities of the CDC National Center on Birth Defects and Developmental Disabilities (NCBDDD). The NCBDDD promotes the health of babies, children, and adults; and enhances their potential for full, productive living.
View 2016 Communication Plan. Read More…

The Friends Quarterly Check In feature updates from the Saving Babies thematic area with short updates from all other areas.

CDC Celebrates World Sickle Cell Day with Launch of New Resources!

June 19th is World Sickle Cell Day. Sickle cell disease (SCD) is a group of inherited red blood cell disorders that affect millions of people worldwide. SCD can cause pain and other serious problems such as infection, vision loss, and stroke, and can lead to lifelong disabilities and reduce average life expectancy. We invite you to join us in raising awareness by reading and sharing our new SCD resources! Read More…

New Sickle Cell Journal Supplement Highlights Impact and Research Advancements Made from Federally Funded Activities

The American Journal of Preventive Medicine (AJPM) today published a supplement supported and coordinated by the Centers for Disease Control and Prevention (CDC) describing sickle cell disease (SCD) research activities that have made significant strides during the past decade toward improving the care and treatment of those living with SCD. The papers in this journal supplement highlight key improvements made since the Sickle Cell Summit in the targeted areas described above, and achieved through activities sponsored by the CDC, the Health Resources and Services Administration (HRSA), and the National Institutes of Health (NIH).  Read more…

Get the 4-1-1: Everything Primary Care Providers (i.e., pediatricians, nurses, and physicians assistants) should know about parent training in behavior therapy while working with families with young children with ADHD

Thursday, June 23, 2016, 1:00 – 2:30  PM ET

This webinar is designed to provide health care providers with the tools and information they will need to appropriately discuss the reasons for and benefits of parent training in behavior therapy with families and refer parents of young children with disruptive behavior, including ADHD, for training in behavior therapy. This webinar series is funded by the Centers for Disease Control and Prevention, U.S. Department of Health and Human Services, under Cooperative Agreement No. 5U38OT000178-03. Read more…

A Clinician’s Tale: How do I Provide the Best Treatment for Young Children with disruptive behaviors, including ADHD?

Wednesday, June 29, 2016, 1:30 – 3:00 PM ET

This webinar is designed to help clinicians (i.e., licensed clinical social workers, licensed professional counselors, licensed psychologists and other licensed therapists) who treat young children with disruptive behaviors, including ADHD to better understand evidence-based and evidence-informed practices (EBP/EIP) they can use to help parents manage their children’s disruptive behaviors and ADHD symptoms. This webinar series is funded by the Centers for Disease Control and Prevention, U.S. Department of Health and Human Services, under Cooperative Agreement No. 5U38OT000178-03.
Read more..

Annual Act Early Ambassador Training

The 2016-18 cohort of 45 Ambassadors representing 41 U.S. states and three territories commenced their first program year collaborating together at their annual Act Early Ambassador training at the CDC. Twenty-two returning Ambassadors, from the 2014-16 cohort, enthusiastically welcomed 23 new Act Early Ambassadors during the June 2016 training, as they shared best practices and innovative activities and products to increase developmental monitoring and screening. Throughout the two day training, the Ambassadors gained knowledge and strategies on reaching critical gatekeepers including physicians and early educators, what parents need to practice developmental monitoring, and how the Action Learning Model can assist them in reflecting and improving their state workplan activities. Read more…

AAP Voices: Don’t Forget the Dads 

• In a new AAP Voices blog post, Michael W. Yog
  Related to the AAP clinical report on fathers released on Monday, June 13, the AAP is publishing two related blogs leading up to Father’s Day. man, MD, FAAP, describes the child-health benefits of hands-on fathers and why he writes prescriptions for daily playtime with dad.
• Dr. David Hill shares his perspective about the benefits of fathers being involved from birth in a post on HealthyChildren.org.

Living Well Post Arterial Switch/Rastelli in the Adult with D-TGA

Wednesday, June 29, 2016, 7:00 p.m. – 8:00 p.m. ET

Are you an adult with transposition of the great arteries (D-TGA) who has undergone an arterial switch or Rastelli repair? If so, this webinar will describe what it means and what to expect in the future. You will learn about exercise recommendations, pregnancy, and atherosclerotic risk factors. You don’t want to miss this webinar. Sign up today. Read More…

Executive Committee

Champions

How to Add NCBDDD Connect Badge to E-mail Signature:

1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
2. Open Microsoft Outlook
3. Go to File > Options > Mail > Signatures
4. Right click the graphic below and select “copy”
5. Paste the graphic into your desired signature in the “Edit signature” field
6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK