June 2015

June 2015

♦ Saving Babies

♦ Protecting People

♦ Helping Children

♦ Improving Health

♦ Connect with Us

♦ Submit Here

Saving Babies
Saving babies through birth defects prevention and research

Kayte Thomas“Birth defects are a critical issue – they are the leading cause of infant mortality and currently, 1 in 33 babies born in the United States has a major structural defect. As the mother of a child born with multiple birth defects and an advocate for countless others like her, it is imperative to me that we focus coordinated efforts on funding research to determine the causes of congenital anomalies so we can improve the lives of those living with them and ensure that future generations are born with a healthy start in life. “  Written by Kayte Thomas, MSW, LCSW-A

NCBDDD Birth Defects Surveillance Toolkit  

NCBDDD Birth Defects Surveillance ToolkitIn collaboration with WHO and the International Clearinghouse for Birth Defects Surveillance and Research, a cross-Divisional working group from NCBDDD developed a comprehensive birth defects surveillance toolkit in an effort to provide countries with a suite of training tools that they could utilize to initiate or enhance a BD surveillance program. Read more…

July: National Cleft and Craniofacial Awareness Prevention Month

Each year in the United States, more than 7,000 babies are born with a cleft lip with or without a cleft palate, or cleft palate alone. These conditions, along with other birth defects of the head and face, are called craniofacial birth defects. July is National Cleft and Craniofacial Awareness and Prevention Month, a great opportunity for people to learn more about these conditions. Throughout July, please be on the lookout for Twitter messages from NCBDDD’s twitter handle, @CDC_NCBDDD.


protectingPeople@2x_background Protecting People
Austin Stop the Clot 5K Run/Walk

Reschedule LOGO-Stacked_Logo_HighRes-1024x470Time – Sunday, Jun 28 2015, 8:00 AM – 10:30 AM
Blood clots (DVTs and PEs) kill more people every year than breast cancer, AIDS and traffic accidents combined in the US! By joining in the fun run, and setting up your own fundraising page, you will be playing a big part in helping to stop the deaths and disabilities due to blood clots and clotting disorders. Read more…


helpingChildren@2x_bacgroundHelping Children
Key Findings: Autism symptoms among children enrolled in the Study to Explore Early Development

The Journal of Autism and Developmental Disorders has published a new analysis looking at autism spectrum disorder (ASD) symptoms among young children enrolled in CDC’s Study to Explore Early Development (SEED). Researchers assessed children with ASD, children with other developmental delays, such as language delays and physical delays, and children from the general population. Children with ASD had more problems with early learning, challenging behaviors, and interacting with others than children classified as having other developmental delays. However, some children with other developmental delays had ASD symptoms that posed significant challenges, even though the child did not meet the full criteria needed to be classified as having ASD. These results support the idea that ASD symptoms are found in children both with and without ASD and highlight the many needs of these children and their families. Because the study enrolled children with varying degrees of ASD symptoms, SEED researchers will be able to explore what puts children at risk for ASD and the different ways children may develop ASD.

Information you can use:

 Act Early Ambassadors Strateg-Retreat

Act Early Embassadors

On May 5-6th, 30 Act Early Ambassadors representing 29 states gathered at NCBDDD in Atlanta to mark the mid-point of their 2-year term with what the program coined a “Strateg-Retreat”.  The day and a half meeting offered the opportunity for Ambassadors, chosen for how highly networked they are within their states, to reconnect with their fellow Act Early Ambassadors and the mission of “Learn the Signs. Act Early.”  Ambassadors spent the time exchanging ideas for how to improve the early identification of developmental disabilities in their states, sharing success stories, and helping each other find solutions to common challenges. “Learn the Signs. Act Early.” program staff shared updates about new projects, new findings, and new resources to help support the Ambassadors’ work.  Re-energized and re-focused, this impressive group of Ambassadors left the “Strateg-Retreat” ready to take on the final year of their term


Improving Health No BackgroundImproving Health
Public Health is for Everyone

Public Health is for Everyone

Dear Friends,

We want to know how are you including people living with disabilities in public health efforts like nutrition, health care access, physical activity, emergency preparedness, and tobacco.  Share your story! It can be a written message, selfie or a photo of things you see in your community that relates to including people living with disabilities in public health efforts.

  • Email us: Send us your story at phetoolkit@aucd.org.
  • Tweet with us: Be sure to use the hashtags #publichealth and #4all in any tweets!
  • Follow us: Follow @PHis4Everyone for updates.

What are the most critical health disparities faced by people with disabilities? How do you connect with them?

With much gratitude for all you do,
The Public Health is for Everyone Team

P.S. Please share your story with us over the month of June.


News from NCBDDD
Executive Committee
How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK



Submit Here
button to submit articles to AUCD 360 form News items may be submitted for consideration via email to acostalas@aucd.orgSend in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 7/8/2015. Photos and web links are encouraged!!

AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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