June 2014: Global Partners Unite to Advance Spina Bifida and Hydrocephalus Prevention and Care

NCBDDD co-hosted the Spina Bifida and Hydrocephalus Partner Engagement Meeting held in Boston, Massachusetts on April 11, 2014. The meeting, organized by Boston Children’s Hospital, the International Federation for Spina Bifida and Hydrocephalus, and NCBDDD, brought together representatives from 21 organizations in various industries to explore synergies to strengthen global efforts for both primary prevention of spina bifida as well as secondary care for persons impacted by spina bifida and hydrocephalus. Although many organizations around the world are focused on these efforts, this meeting marked the first-ever discussion among them to advance spina bifida and hydrocephalus prevention and care together. Central to the discussion were the challenges related to sustaining individual organizational efforts and remaining visible in a time of competing priorities and tight budgets. Strategic partnerships can help overcome these challenges and decrease duplication of efforts. This meeting launched what promises to be an important first step in a much needed collaborative effort to improve child health globally. For more information about the Spina Bifida and Hydrocephalus Partner Engagement Meeting, or to learn more about how to become involved in this effort, please contact Aliki P. Weakland at AWeakland@cdc.gov.

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