June 2011

News from the Friends of NCBDDD
NCBDDD Budget Overview Archive

NCBDDD staff provided a comprehensive overview of the NCBDDD budget including highlights of the FY 2011 and President’s FY 2012 Budget request and an overview of the Executive Branch budget development process. 

NCBDDD Budget Overview Slides[, 636KB]

Image linked to archived webinar Archived Webinar

NCBDDD Partner Open House Agenda Outline

NCBDDD staff are invested in making this partner open house and one day meeting on August 11th a worthwhile experience. While the agenda is still being finalized, it would be helpful to know about any specific topics or questions that you would like to see addressed during the partner open house.  
Please RSVP at: http://www.surveymonkey.com/s/8112011

Thursday, August 11th, 9:00am
Agenda Outline

•  Opening Remarks/ Updates from Center           
Featuring: NCBDDD Director, Coleen Boyle; CDC Director, Thomas Frieden (Invited); Friends of NCBDDD; and NCBDDD Division Directors.

•  Partner Exhibits
Browse partner exhibits and enjoy light refreshments in exhibit hall. Also meet with Procurement and Grants Office and Extramural Research Office representatives who will be available during this time.

•  Division Concurrent Program Open Sessions
Visit each session to meet with program staff from various projects across the center, receive/ share information and materials, hear about new initiatives and be able to offer feedback and ask questions!

•  Lunch Presentation
Featuring: CDC Foundation on public/ private partnerships

•  NCBDDD Budget Consolidation Listening Session

•  Closing

Please feel free to send comments/ suggestions to Julia Richardson, JRichardson1@cdc.gov.

Drs. Coleen Boyle and Gloria Krahn of NCBDDD Attend World Report on Disability Launch

On Thursday (June 9, 2011), the World Health Organization and the World Bank released the first-ever World Report on Disability, which suggests that more than a billion people in the world today experience disability.  The report provides the best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with disabilities to flourish. The report ends with a concrete set of recommended actions for governments and their partners.  Drs. Coleen Boyle and Gloria Krahn of CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) attended the launch of the report.  Held at the United Nations Building in New York City, Dr. Boyle provided remarks on CDC’s role in protecting the health of all Americans, including the 54 million Americans with disabilities.  NCBDDD’s Division of Human Development and Disability is honored to have been a collaborator on this landmark report, contributing significantly to the health chapter.

Health Indicator Data Fact Sheets

CDC’s Disability and Health Program has developed fact sheets that provide state, district and territory based health indicator data to demonstrate health disparities among people with disabilities. Fact Sheet topics include:

  • How many people have disabilities?
  • Cigarette Smoking and People with Disabilities
  • Cost as a Barrier to Care for People with Disabilities
  • Mammography Use and Women with Disabilities
  • Obesity and People with Disabilities
  • Oral Health and People with Disabilities
  • Physical Activity and People with Disabilities

View Health Indicator Data Fact Sheets.

News from the Friends of NCBDDD Advocacy Coalition 
Friends Advocacy Coalition To Meet in DC July 6

The Friends of NCBDDD Advocacy Coalition will conduct a face-to-face meeting in Washington, DC on July 6. Those able to directly work on NCBDDD appropriations are invited to attend. The objective of the meeting is to seek consensus among NCBDDD interested organizations, working through the coalition, on NCBDDD appropriations work. For information, contact the advocacy coalition chair at clarkeross10@comcast.net.

CDC and NCBDDD Budget History, 2003-2012  

Two new resources on the 2003-2012 budget histories of CDC and NCBDDD have been added to the Friends website. The 2012 levels are based on the Congressional percentage reduction applied in federal fiscal year 2011. CDC budget authority declined from $6.4 billion to $5.7 billion between FY 10 and FY 11 while NCBDDD appropriations declined from $143.626 million to $136.072 million between FY 10 and FY 11. 
View CDC Total Budget Authority 2003-2012
View NCBDDD Appropriations History 2003-2012

News from our Partners
Online Health Promotion for Adults with Disabilities from NCPAD

Recognizing the need for inclusive online health promotion strategies for people with mobility limitations, chronic health conditions and physical disabilities, the National Center on Physical Activity and Disability (NCPAD) has launched the NCPAD 14-Week Program to a Healthier You! for the third year.  The program provides individuals with information on how to exercise and eat nutritious foods in a way that meets their individual needs and goals, as well as provides motivational tools to help participants initiate and maintain healthy behaviors. Additionally, this year the program has a new interactive interface and is uniquely designed to each participant’s ability level and interests. Several key features of the program include:

  • Motivational Resources
  • Physical Activity and Nutrition Suggestions and Logging Features
  • Social Networking Components
  • Live NCPAD Coaches Available Monday Through Friday
  • Reminders and Alerts

To view this innovative program and share the provided information with others please visit the NCPAD 14-Week Program website. When prompted to answer your primary use of the program please answer “To Benefits Others.”

AMCHP’s Illinois Peer-to-Peer Exchange

The AMCHP State Public Health Autism Resource Center (SPHARC) has developed a communities of learner program, the Peer-to-Peer Exchange.  This program links states based on common needs and state plan goals to tailor a technical assistance model around the six critical CYSHCN indicators. Previous exchanges have focused on transition, screening and medical home. A fourth Peer-to-Peer Exchange took place in Chicago on June 23-24, 2011 and focused on Cultural Competency and Using Families to Engage Providers. SPHARC is a comprehensive resource center for state Title V agencies and others interested in improving systems for children, youth and families with autism spectrum disorder and other developmental disabilities (ASD/DD).  Information from all past exchanges can be found on the SPHARC website.

ACOG Annual Meeting Symposium: “Moving Forward: Pregnancy in Women with Physical Disabilities”

Dr. Caroline C. Signore, MD, MPH, delivered a symposium entitled “Moving Forward: Pregnancy in Women with Physical Disabilities” at the annual meeting of the American College of Obstetricians and Gynecologists on May 3, 2011.  Dr. Signore, an Obstetrician Gynecologist and epidemiologist at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) engaged her audience with information on the high prevalence of disabilities in women of reproductive age, the desire of many to become pregnant and the role of the physician in assisting women to achieve that desire.   She spoke of the abilities of most women with physical disabilities to become pregnant and to deliver and suitably parent a healthy infant.  Dr. Signore outlined specific considerations for the physician, such as the problem of gestational weight in ambulation and accomplishing safe transfers, the risks of thromboembolism and urinary tract infections and the occurrence and emergency treatment of autonomic dysreflexia.  Dr. Signore, who sustained a cervical spine injury several years ago, says that she can relate to the concerns of both the ob-gyn and the woman with disabilities having a personal experience in both roles.  More information about ACOG’s Annual Meeting.

AAHD Launches Weekly “Disability and Public Health in the Media”  E-Alert

In June, AAHD’s launched a new weekly electronic update, “Disability and Public Health in the Media”. Each Tuesday, AAHD will provide an overview of the prior week’s media coverage on topics related to disability and public health. Our goal is to keep our colleagues and friends informed of disability and public health topics in the media at the local, state and national level. It is our intent that this weekly information will support our colleagues in their work. Please feel free to share the weekly updates with your colleagues.  If you would like to receive AAHD’s  E-Alert,  please send an email to contact@aahd.us.

Safe Medication Administration Course Offering NAPNAP Contact and Rx Hours on NAPNAP’s PNPSourCE

“Promoting Safe Medication Administration Practices in Child Care & Early Education Programs,” an online learning experience providing an overview of medication administration issues in child care and early education settings, offers 1.0 NAPNAP contact hour (with Rx Designation).  Visit PNPSourCE at www.napnapce.org to learn more. 

Partner Conferences

36th Annual TASH Conference
November 30-December 3, 2011
Atlanta, Georgia

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