July 2015

♦ News from NCBDDD Executive Committee

♦ Saving Babies

♦ Protecting People

♦ Helping Children

♦ Improving Health

♦ News from NCBDDD

♦ Connect with Us

♦ Submit Here

News from NCBDDD Executive Committee
6.26.15 Strategy PlanningThe Friends of NCBDDD Executive Committee is excited to report that they have collaborated with NCBDDD to develop four Friends focus areas:

Saving Babies through Birth Defects Research and PreventionSaving babies through birth defects prevention and research

Understanding Autism to Help Children Live to the FullestHelping children live to the fullest by understanding developmental disabilities like autism

Protecting People and Preventing Complications of Blood DisordersProtecting people and preventing complications of blood disorders

Improving the Health of People with DisabilitiesImproving the health of people with disabilities

An updated 2015-2016 strategy overview is currently being developed and will be rolled out in the fall.

Meet the current Champions!

The Executive Committee needs you! You are invited to serve on the new Thematic Area “kitchen cabinets.” These kitchen cabinets will be key partners who will advise the Champions and the NCBDDD in each of the Thematic Areas. Acting as a think tank, each Thematic Area kitchen cabinet will be composed of a group of 10-15 key partners whose mission and work relate to the particular Thematic Area. The time commitment would involve quarterly conference calls. If you are interested in serving on Thematic Area “kitchen cabinet,” please contact the Friends Chair, Adriane Griffen, at agriffen@aucd.org.

Saving Babies
July: National Cleft and Craniofacial Awareness and Prevention Month

“Each year in the United States, about 2,600 babies are born with a cleft palate and 4,400 babies are born with a cleft lip, with or without a cleft palate. These numbers amount to over 7,000 U.S. babies being born with a clefts every year. These conditions, along with other birth defects of the head and face, are called craniofacial birth defects. Annually, July is observed as National Cleft and Craniofacial Awareness and Prevention Month, a time for CDC and its partners to increase awareness and to better inform our communities about these conditions. Read More…

Social Work Discipline-Specific Workgroup Meeting for FASD PICS and Partners Grantees

NCBDDD grantees representing the Fetal Alcohol Spectrum Disorders (FASD) Practice and Implementation Centers and National Partners are developing new strategies to reach health care providers in the prevention of FASDs. In this design, grantees have been paired to create discipline-specific workgroups (DSWs) to develop approaches for influencing practice and systems change at the national level. In the spirit of collaboration the social work DSW had a very successful short one plus day retreat in May in Houston. Pictured are members from Baylor College of Medicine, University of Missouri, and University of Texas at Austin School of Social Work.

Birth Defects COUNT Surveillance Toolkit Facilitator’s Guide

Birth Defects COUNT—NCBDDD’s global initiative to reduce morbidity and mortality related to folic acid preventable birth defects—has collaborated with WHO and the International Clearinghouse for Birth Defects Surveillance and Research on the development of a comprehensive birth defects surveillance toolkit to assist countries in initiating or enhancing birth defects surveillance. The most recent component of the toolkit to be finalized and published is the Facilitator’s Guide. This Guide complements an already-published birth defects surveillance manual and birth defects photo atlas, and is intended to provide surveillance “champions” with a train-the-trainer tool that they can use to develop and conduct a birth defects surveillance training for their own country staff. The Guide aids countries in building birth defects surveillance capacity from within, which helps to promote surveillance infrastructure development and sustainability. The Facilitator’s Guide is currently published both on the WHO site, and on the NCBDDD site. In the near future, it will also be published on a CDC Surveillance Toolkit site that is currently under development. View the Facilitator’s Guide. For more information on the Toolkit, please contact Alina Flores at ail5@cdc.gov.

protectingPeople@2x_background Protecting People
New Study Findings: Multiple sources of data are needed for accurate reporting of blood clots following surgery

The journal Thrombosis Research has published a new study that used multiple sources of data to look at rates of blood clots or venous thromboembolism or VTE (DVT/PE) occurring after surgery among veterans who were hospitalized for surgeries during the period 2005 to 2010. VTE is an important and preventable health problem that is more common after surgery. Better quality data on how often VTE occurs is needed to determine the success of efforts to prevent VTE in veterans and other patients. You can read the article’s abstract here. To learn more about DVT/PE, please visit http://www.cdc.gov/ncbddd/dvt/index.html.

helpingChildren@2x_bacgroundHelping Children
For Parents: Vaccines for your children

Immunizations have had an enormous impact on improving the health of children in the United States.  Please advise families who may be traveling this summer to be sure they have the vaccines they need.  More on preparing for travel abroad with your family. http://www.cdc.gov/features/vaccines-travel/

Improving Health No BackgroundImproving Health
25th Anniversary of the Americans with Disabilities Act (ADA)

ada25July 26th marks the 25th anniversary of the landmark Americans with Disabilities Act (ADA), a civil rights law that promotes the inclusion of people with disabilities at work, school, or other community settings. The Centers for Disease Control and Prevention (CDC) recognizes ADA as an opportunity for the inclusion of people with disabilities in federal efforts related to health and health care. The work of CDC honors the intent of the ADA as a critical piece of civil rights legislation that can ensure that people with disabilities receive critical healthcare services and programs, enjoy a high quality of life, experience independence in their community, and reach their full potential. Read more…

Congratulations – Alcohol SBI Poster Best at IRETA SBIRT Conference

Over the past two years, our colleagues at the Frontier FASD Regional Training Center (RTC) at the University of Nevada, Reno worked to implement alcohol screening and brief intervention (SBI) in a primary care system with clinics in Reno and Las Vegas. In June, at a national conference in Pittsburgh entitled “Screening, Brief Intervention & Referral to Treatment for Alcohol and Other Drug Use: An Inter-Professional Conference” they presented results of their work, highlighting their implementation experiences. The RTC’s poster, “Implementation of a Multi-Clinic Alcohol Screening & Brief Intervention Project: Evaluating Clinic and Project Staff Perspectives,” was awarded “best overall paper poster” at the meeting. Congratulations to Carina Rivera and Carolyn Edney! Thank you for your dedication to this topic and we are proud to have your work recognized by the field. Read more…

UCLA’s Olivia Raynor on the signing of the Americans with Disabilities Act 25 years ago

Olivia RaynorOn Monday, President Obama and disability rights leaders from across the country, including UCLA’s Olivia Raynor, gathered at the White House to celebrate the 25th anniversary of the signing of the historic Americans with Disabilities Act (ADA) by President George H. W. Bush on July 26, 1990. Raynor is director of UCLA’s Tarjan Center that advances employment, access to postsecondary education, careers in the arts for people with disabilities and newer treatments in autism and cerebral palsy. Located in the Semel Institute, it is one of 67 University Centers for Excellence in Developmental Disabilities Education, Research and Service (UCEDD), part of a national network of university-based interdisciplinary programs. An adjunct professor in the Department of Psychiatry and Biobehavioral Sciences, Raynor is also board president of the Association for University Centers on Disabilities as well as the founder of the National Arts and Disability Center at UCLA and a member of the California State Council on Developmental Disabilities. Read more…

News from NCBDDD
Executive Committee
How to Add NCBDDD Connect Badge to E-mail Signature:
  1. To add the “Connect with NCBDDD” button to an e-mail signature follow the steps below:
  2. Open Microsoft Outlook
  3. Go to File > Options > Mail > Signatures
  4. Right click the graphic below and select “copy”
  5. Paste the graphic into your desired signature in the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK


Submit Here
button to submit articles to AUCD 360 form News items may be submitted for consideration via email to acostalas@aucd.org. Send in updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 8/10/2015. Photos and web links are encouraged!!

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The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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