July 2014: NHF Initiates Practice Guidelines on Hemophilia Care

National Hemophilia FoundationThe National Hemophilia Foundation (NHF), with the guidance of its Medical and Scientific Advisory Council (MASAC), recently announced that it is initiating a multi-year project to develop evidence-based clinical practice guidelines (CPGs) to ensure that patients with hemophilia in the United States and elsewhere receive high quality care. With ongoing changes in the healthcare environment, an NHF and MASAC working group determined that the first guideline would focus on evaluating care models for hemophilia management, including the comprehensive care model of the hemophilia treatment centers (HTCs). The goal of this guideline will be to support patient-centered clinical decision-making and optimize hemophilia care for each patient.

For this project, NHF is partnering with McMaster University, which has an international reputation for its work in CPG development, for the guideline on care models. Drs. Holger Schünemann and Alfonso Iorio of the Department of Clinical Epidemiology and Biostatics at McMaster University will be serving as co-principal investigators for the project.

The first guideline panel meeting was held on June 21st, during the 60th annual meeting of the International Society on Thrombosis and Haemostasis (ISTH) Scientific and Standardization Committee in Milwaukee, WI. At this meeting, the panel members reviewed the scope of the guidelines and the questions that will be addressed by the guidelines. The guideline project on models of hemophilia care should be completed by the end of 2015.

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