July 2011

News from the Friends of NCBDDD Advocacy Coalition
NCBDDD Advocacy Coalition Leadership Expands

On July 6, 34 national organization representatives met in a face-to-face Friends of NCBDDD advocacy coalition meeting. One result of the meeting was an expansion of the coalition leadership to more effectively represent the complete NCBDDD program portfolio. The advocacy coalition current leadership follows:

Chair & Disabilities Representative: Clarke Ross, D.P.A., Policy in Context Consulting, clarkeross10@comcast.net, 410-451-4295

Vice Chair & Birth Defects Representative: Emil Wigode, Director, Federal Affairs; March of Dimes; ewigode@marchofdimes.com, 202-659-1800

Vice Chair & Blood Disorders Representative: Ellen Riker, National Hemophilia Foundation, eriker@dc-crd.com, 202-484-1100.

News from our Partners

Tourette Syndrome Association Program Partnership Now In Its Seventh Year

The professional education and outreach partnership joining Tourette Syndrome Association (TSA) and the NCBDDD is well into its seventh year.  Its core feature includes mounting over 430 live programs on Tourette Syndrome recognition, diagnosis and treatment presented at host settings in every state in the country, and to nearly 28,000 physicians, teachers, educators, and clinicians.  Interest in Cognitive Behavioral Interventions For Tics (known as CBIT, a new, evidence-based, non-pharmaceutical cognitive behavioral psychology approach to modification of tic expression) has increased this year, and many programs have been mounted to accommodate this growing interest.  Military medical providers have also indicated great interest in participating in TSA’s educational outreach. This year the program will be offered at military medical centers in Hawaii, Washington state, and Washington D.C.  Other recent program activities include translation of TSA materials into Spanish, Chinese and Korean, outreach to residency training directors, development of web content, and promotion of grassroots participation and outreach by offering TS education and awareness programs to the general public.  The partnership has mounted a special web page on bullying prevention on the TSA website at  http://www.tsa-usa.org/news/0410ConfVideo.html.  Please visit the TSA website at www.tsa-usa.org.   

New NACCHO Learning Community: Disability and Obesity and Physical Activity

The National Association of County and City Health Officials (NACCHO) Health and Disability project, through a cooperative agreement with the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, is proud to sponsor the Health and Disability Learning Community. Join us as we kick off our second module on obesity and physical activity for people with disabilities on August 18 at 3 pm Eastern time. Topics for discussion may include understanding and measuring causes of obesity, the disproportionate impact of the obesity epidemic on people with disabilities, and discussing accessible and inclusive nutrition and physical activity programs. This is an opportunity to network, learn, and share with your peers at local and state health departments, disability organizations, academic institutions, and more.  Even if you are unable to join the call, join our learning community! To learn more: http://www.naccho.org/topics/HPDP/healthdisa/learncomm.cfm

Immunization Update course offering NAPNAP Contact and Rx Hours on PNPSourCENew

Immunization recommendations continue to change. Back by popular demand, Dr. William Atkinson, MD, MPH, from the National Center for Immunization and Respiratory Disease of the Centers for Disease Control and Prevention, advises practitioners about pertinent issues in pediatric and adolescent immunizations. Current controversies, the recommended schedule, clarification of the guidelines and an update of newly licensed vaccines will be highlighted.  This session, consisting of slides and audio, is recorded from the 2011 NAPNAP Conference in Baltimore and offers 1.0 NAPNAP contact hour (with Rx Designation).  Visit PNPSourCE at www.napnapce.org today to learn more.

Partner Conferences


2012 International Conference on SIDS, Stillbirth, and SUID
October 5-7, 2012
Baltimore, Maryland

2011 AAP National Conference & Exhibition
October 15-18, 2011
Boston, Massachusetts

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