June 2017

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News from Executive Committee

Saving Babies

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News from Executive Committee
Hello, Friends of NCBDDD,Happy June and happy (almost) Summer Solstice! It’s hard to believe we’ve reached the halfway point of 2017.

Your Executive Committee has been hard at work coordinating two upcoming activities. First, we hope you can join us this Thursday, June 22, for a FY 2018 Budget Briefing with Dr. Boyle. This promises to be an informative discussion about the President’s FY 2018 budget request. Additional details can be found below.

We are also working closely with the Advocacy Coalition to arrange a day on Capitol Hill to educate Members of Congress about the important work of NCBDDD. That will take place next Thursday, June 29th. Please reach out to me if you would like further information.

Best,
Becky Abbott
Chair, Friends of NCBDDD
rabbott@marchofdimes.org

FY 2018 NCBDDD Budget Briefing
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Thursday, June 22, 2017, 3:00 p.m. – 4:30 p.m. ET

Join the Friends of NCBDDD for a review of the President’s FY 2018 budget request for the Center with Dr. Coleen Boyle, NCBDDD Director.In order to provide more interaction with partners, CDC/NCBDDD staff will be providing an in-person budget briefing for partners, with a remote participation options. This replaces the previously scheduled June 12 webinar. The meeting will take place at AcademyHealth at 1666 K St NW Ste 1100, Washington, DC 20006.

3:00 p.m. – 4:00 p.m. NCBDDD staff presentations with a Q&A
4:00 p.m. – 4:30 p.m. Business meeting without our colleagues from NCBDDD to discuss         activities for the year ahead

Saving Babies
National Birth Defects Prevention Network

The NBDPN Annual Report will be published in November’s issue of Birth Defects Research with a data brief focused on gastrointestinal defects. The issue will also include peer-reviewed articles on themes of birth defects surveillance and research. 

Save – the – Date for the Network’s 2017 Annual Meeting, which will be held as a virtual meeting September 13th and 4th in webinar format. Read more…

CDC Resources to Protect People from Zika this Summer

CDC works to protect the public, especially pregnant women and their fetuses, from the Zika virus. Please feel free to share widely the below information with your networks in an effort to help ensure people have the tools to protect themselves against Zika this summer. Below, you will find resources and guidance CDC is sharing for protecting pregnant women and families; preventing mosquito bites; and traveling safely. Read more…

Protecting People background imageProtecting People


Save the Date: Speak for Yourself Workshop

ucp logoFriday, September 22, 2017, 9:00 a.m. – 5:00 p.m. ET, 

Learn more about patient-centered outcomes research and how it is empowering people with disabilities to speak or themselves. Engage with policy advocates and inform resource guides for patient-centered advocacy. Event Flyer / RSVP

 

helpingChildren@2x_bacgroundHelping Children
New Infographic:  ADHD and Co-Occurring Conditions

More than two-thirds of individuals with ADHD have at least one other coexisting condition.  Which disorders often coexist with ADHD?  Check out NRC’s new infographic for information on the ten co-occurring conditions and their prevalence, symptoms and treatment options.
Read more…

Dr. Georgina Peacock, Opening Keynote Speaker at CHADD Conference

Dr. Georgina Peacock, Director of the Division of Human Development and Disability in CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD), will deliver the opening keynote at CHADD’s 2017 Annual International Conference on ADHD, November 9 in Atlanta.  In her presentation “Focus for the Future: Individual- and Population-Level Perspectives on ADHD”, Dr Peacock will relay her experiences assessing and treating children with ADHD, along with implications of those experiences on CDC’s public health activities to support families, get children and adolescents the right care at the right time, and educate professionals and decision-makers about ADHD. To register for the conference, click here.

Dr. Alyson Gerdes to Present on Culturally-adapted ADHD Treatment for Latino families

Do you work with Hispanic/Latino families who have children with ADHD? Dr. Alyson Gerdes and her Spanish-fluent team developed, under an NIH grant, a culturally adapted treatment program for Hispanic/Latino families affected by ADHD.  At CHADD’s Annual International Conference on ADHD November 10th, she will present results of implementing the program pilot.  Dr. Gerdes is Associate Professor of Psychology at Marquette University. Register for the conference and read more about Dr. Gerdes’ presentation,Familias Sanas: A Culturally-Adapted ADHD Treatment for Latino Families.”

Improving Health No BackgroundImproving Health
Aging with Congenitally Corrected Transposition of the Great Arteries (ccTGA)

Wednesday, June 28, 2017, 7:00 p.m. – 8:00 p.m. ET 

Are you an adult with congenitally corrected transposition of the great arteries or L-transposition of the great arteries? Have you undergone cardiac surgery with an anatomic repair (double switch procedure)? Have you undergone cardiac surgery with a subpulmonic left ventricular conduit to the pulmonary artery? If so, this webinar will describe what it means and what to expect in the future including exercise recommendations and pregnancy. Event Flyer / Register

 

News from NCBDDD
Social Media Corner
Please Add NCBDDD Connect Badge to Your E-mail Signature:
  1. Open Microsoft Outlook
  2. Go to File > Options > Mail > Signatures
  3. Right click the graphic below and select “copy”
  4. Paste the graphic into your desired signature in the “Edit signature” field
  5. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  6. Click on the graphic and then click the hyperlink icon in the top right of the “Edit signature” field
  7. Be sure http://www.cdc.gov/ncbddd/connect/index.html is listed in the URL box and hit OK

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Submit Here
Do you have an update or event you would like to share with the Friends of NCBDDD? Newsletter items may be submitted for consideration via email to acostalas@aucd.org. Send updates on conferences, meetings, special awards and journal or research announcements for the next edition of the Friends of NCBDDD E-Newsletter! Submit program highlights with a short summary of 150-200 words to Anna Costalas by 6/10/2017. Photos and web links are encouraged!!

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The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Anna Costalas.

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