Family Voices ~ NCBDDD Family Liaisons ~ Cohort 2017

Family Voices is pleased to announce the 2017-18 Family Liaisons to the Friends to NCBDDD.  The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the Center for Disease Control (CDC), National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders.

Liaisons follow each thematic area)
Saving babies through birth defects prevention and research:

  • Nicole Pratt, Statewide Parent Advocacy Network
  • Sondra Gilbert, Kentucky Family to Family  

Helping children live to the fullest by understanding developmental disabilities:

  • Artila Mims, ARC of Illinois
  • Crystal Bell, Missouri Family to Family

Protecting people and preventing complications of blood disorders:

  • Courtney Stinnett, STORM

Improving health of people with disabilities: 

  • Deepa Srinivasavaradan Statewide Parent Advocacy Network
  • Bridgit Frank Wisconsin Family Voices

The Family Liaisons selected will participate in each thematic area and advise the Friends on strategies that enhance communication between families and key target audiences of the Friends including policy makers, non-government organizations, and service providers. https://friendsofncbddd.org/family-representative-liaisons-connections-across-thematic-areas/.   Each Family Liaison will receive a $300.00 Honorarium per year for the following activities; attending quarterly all-staff Friends calls; attending quarterly check-in calls; submitting articles to the Friends Newsletters and contributing to and soliciting family stories to the CDC/NCBDDD. In return for their service, Family Liaisons are provided access to NCBDDD/CDC information, leadership, FV support and training, webinars and an endless array of opportunities for networking.  Family Liaisons are also invited to attend the yearly in-person Friends of NCBDDD meeting usually held in conjunction with the AUCD or AMCHP conference.  The appointments are for one year but may be extended as funding permits.

Just to share a little about this cohort ~ As family leaders they also have experience with LENDS, serve as Act Early Ambassadors, parent trainers, have degrees in research, experience with forming parent group organizations, and have served on advisory boards in addition to having a child(ren) with special health care needs and many, many, other talents.  

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