Empowering patients to talk to their health care team about research
Date: Thursday, September 8, 2016
Time: 7:00 pm – 8:00 pm EDT
Presenter: Danielle Hile
About the Webinar
What do you think of when you hear the word, “research”? Have you even thought about being a subject in a research study? If so, how do you find a study that’s right for you? All of these questions and more will be answered in this webinar. Danielle Hile, Director of Programs at the Adult Congenital Heart Association (ACHA), will tell you about the different types of research, where to look if you’re interesting in participating and questions to ask your ACHD cardiologist about finding a research study for you. Sign up now.
About the Speaker
Danielle Hile, ACHA Director of Programs, has more than 12 years of nonprofit program-related and volunteer management experience. In her role she is responsible for program design and management; professional membership; research, evaluation and quality assurance; and leadership and team management. Before joining ACHA she was the Program Director for the Arthritis Foundation where she significantly grew the sustainable program offerings, diversification of funding streams, advocacy initiatives and dedicated volunteer pool. Danielle is also experienced in grant writing, advocacy, program evaluation and development, and program management. Danielle holds a Bachelor of Science degree in Speech Communication from Millersville University.
About the Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org.