News from the Friends of NCBDDD
Friends of NCBDDD Annual Meeting Held
The Friends of NCBDDD met at an in person meeting on December 5, 2012, in Washington, DC. The theme of the meeting was, “Making Connections.” Key successes, focus areas, and updates were provided by Dr. Coleen Boyle, Director, National Center on Birth Defects and Developmental Disabilities; Dr. Cynthia Moore, Director, Division of Birth Defects and Developmental Disabilities; Dr. Gloria Krahn, Director, Division of Human Development and Disability; and Dr. Christopher Parker, Deputy Directory, Division of Blood Disorders. The Friends also had an opportunity to ask questions and connect with Dr. Boyle and her leadership team. Visit the Friends of NCBDDD website to view information from the meeting.
New Executive Committee Members Announced
The December 5th meeting was also a time to recognize outgoing Friends Executive Committee members and introduce incoming officers. Outgoing members include Roberta Carlin, Chair; Joseph Canose, Vice Chair; Adriane Griffen, Member and Communication Chair; Eileen Ouellette, Member at Large; and Patricia Wright, Member at Large. New members of the Executive Committee will be Adriane Griffen, Chair; Craig Mason, Vice Chair; Judit Ungar/Jeff Cohen, Membership/Communications Chair; Carolyn Mullen, Mary Andrus, Cindy Brownstein, Members at Large; Emil Wigode, Advocacy Coalition; and Roberta Carlin, Past Chair.
News from NCBDDD
Public Health Grand Rounds on December 18
The topic of CDC’s Public Health Grand Rounds will be, “Where in health is disability? Public health practices to include people with disabilities.” It will take place on Tuesday, December 18 at 1:00 pm ET, at CDC’s Roybal Campus, Building 19, Auditorium A, Atlanta, GA. If you cannot join in person, please join by live webcast at: www.cdc.gov/about/grand-rounds or follow the twitter hashtag: #cdcgrandrounds. Presenters will include:
• Gloria Krahn, PhD, MPH, Director, Division of Human Development and Disability, NCBDDD, CDC, “Who are People with Disabilities?,”
• Monika Mitra, PhD, Assistant Professor, University of Massachusetts Medical School, “Disparities in Health among People with Disabilities in Massachusetts,”
• Jennifer Hootman, Phd, ATC, FACSM, FNATA, Epidemiologist, Arthritis Program, Division of Population Health, NCBDDD, CDC, “Expanding Reach of Evidence-based Health Promotion Programs,”
• Catherine Graham, MEBME, Rehabilitation Engineer, School of Medicine Interagency Office of Disability and Health, University of South Carolina School of Medicine, “Health and Wellness in People with Disabilities: Progress in South Carolina,” and
• Georges Benjamin, MD, FACP, FNAPA, FACEP (E), Hon FRSPH, Executive Director, American Public Health Association, “Strengthening Accessibility in Public Health.”
*Upcoming for January! CDC’s Public Health Grand Rounds, “Venous Thromboembolism (VTE),” will take place on Tuesday, January 15, 1:00 pm ET, at CDC’s Roybal Campus, Building 19, Auditorium A, Atlanta, GA. You can also join via live webcast: www.cdc.gov/about/grand-rounds or Twitter: #cdcgrandrounds.
Free Continuing Education Opportunity
Receive free training and continuing education opportunities/contact hours for watching broadcasts of Public Health Grand Rounds (PHGR). The course code for PHGR is PHGR10. Thirty days from the initial session, the course number will change to WE1640 and will be available for continuing education for two years after the initial presentation date. Registration is not require to watch the live webcast of PHGR; however, you must register for continuing education. Find more information at: http://www2a.cdc.gov/TCEOnline/.
AJPM Publishes NCBDDD!
NCBDDD is excited to announce that it was recently published in the November 15th issue of the American Journal of Preventive Medicine. The article entitled, “The National Center on Birth Defects and Developmental Disabilities: Past, Present, and Future,” was authored by Coleen Boyle, Jose F. Cordero, and Edwin Trevathan.
Please visit the American Journal of Preventive Medicine to access the full text of this article, which will depend on your personal or institutional entitlements.
National Folic Acid Awareness Week Webinar
As part of National Folic Acid Awareness Week, you are invited to attend a webinar, “Formative Research with Women of Childbearing-Age to Evaluate Existing CDC Foclic Acid Educational Materials.” On Tuesday, January 8, from 10:00-11:30 am ET. The Prevention Research Team at the National Center on Birth Defects and Developmental Disabilities has provided folic acid educational materials to public health professionals, health care professionals, and the public, for several years. To ensure that the messages and visual appeal of the materials are current and effective, NCBDDD conducted formative research in August 2012 among women of childbearing age.
In this session, Alina Flores, health education specialist for the Prevention Research Team, will discuss the findings from the formative work. After the presentation, participants will engage in discussion around how the findings impact their organization’s educational outreach, and how they can best utilize limited funds for the development of educational materials.
Please note that the lines available are limited. If you would like to attend this webinar, please send an email to firstname.lastname@example.org and place “RSVP” in the subject line. You will receive a reply with the call-in information.
CDC Celebrates National Birth Defects Prevention Month in January 2013
Please join NCBDDD in commemorating National Birth Defects Prevention Month during January 2013! There will be activities and features throughout January that will provide the latest information about birth defects and how to prevent them.
Special Web Features
A series of web features will be posted on the CDC website. The first one, in honor of National Folic Acid Awareness Week, highlights the importance of consuming 400 micrograms of folic acid daily before and during early pregnancy to reduce the risk of neural tube defects. Check back each week to see new features on birth defects, including a story of a family affected by birth defects and an interactive quiz to test your knowledge about birth defects.
Family Stories & Photos (Flickr)
Birth defects don’t just impact the lives of the children who are affected. They are conditions which impact the entire family. Throughout January, we’ll be featuring the photos and stories of several families and individuals whose lives have been changed by birth defects. The album will be posted in early January. To view the album, please visit: http://www.flickr.com/photos/cdcsocialmedia/. For more information, please contact Kara Polen at 404-498-3914 or email@example.com.
National Birth Defects Prevention Month Tweet-Up
During the entire month of January, we will be sharing a fact a day on Twitter to raise awareness of birth defects. Each daily fact will be marked by the hashtag: #1in33. We encourage you to participate by following and re-tweeting the facts! Feel free to add content that is more specific to your priorities or customize them to incorporate your state data—just remember to use hashtag #1in33. Please share with your colleagues and other groups who might be interested in participating.
Twitter Chat: What have we learned about preventing birth defects?
March of Dimes is hosting a Twitter chat on Thursday January 10th from 1:00-2:00 pm ET. NCBDDD has been invited to talk about what we’ve learned about preventing birth defects. We’ll highlight birth defects research over the years and provide tips for a healthy pregnancy. We hope you can join us.
What you can do:
• Forward this email to your colleagues and networks and ask them to participate!
• Promote the chat with your own tweets or by retweeting @DrBoyleCDC.
• Be part of the chat on Thursday, January 10 and talk about what you and your organization are doing to prevent birth defects.
Morbidity and Mortality Weekly Report (MMWR) Announcement
We’ve included an announcement on National Birth Defects Prevention Month and Folic Acid Awareness Week in the January 11th issue of MMWR.
National Birth Defects Prevention Network Educational & Promotional Materials
The National Birth Defects Prevention Network has educational and promotional materials available via their website: http://www.nbdpn.org/bdpm2013.php. Feel free to use these materials to promote birth defects awareness and prevention.
Please visit the NCBDDD’s birth defects website at www.cdc.gov/birthdefects for more information, including the latest research, data & statistics, podcasts, and more!
News from our Partners
Autism Screening Article Published in AJPM
The article, “Reaching Underserved Children with Autism Screening: The 211 LA Developmental Screening Project” has been published in the December 2012 issue of the American Journal of Preventive Medicine. 211 is the nationwide health and human services help line that reaches more than 80% of the country. The article describes how the help line can be used to conduct evidenced-based developmental and autism screening for the high-risk population it serves. This approach goes beyond “screening” to assist already stressed families navigate the complicated network of services to get the help they need, when they need it.
It took almost 10 years to develop this idea though the Early Identification and Intervention (EII) Collaborative, get 211 Los Angeles County engaged, secure pilot funding, and test the concept. Margaret Dunkle, founder and director of the EII Collaborative for Los Angeles County states, “It is heartening to see that, while there are still policy, funding, and implementation issues to tackle, this approach has great promise.” Ms. Dunkle continues to direct the EII Collaborative and is also a research scientist in the Department of Health Policy at The George Washington University.
OAR Invites Proposals for its Annual Applied Research Competition
The Organization for Autism Research (OAR) is inviting research pre-proposals for its 11th Annual Applied Research Competition. Since the inception of the Annual Applied Research Competition, OAR has awarded more than $2.6 Million to 78 researchers. The Applied Research Competition will remain open for pre-proposal applications until Friday, April 5, 2013. Through this program, OAR seeks to fund studies of up to two years in length that will produce practical and objective results that benefit individuals with autism spectrum disorders, their families, and related service providers at different times in their lives. Grants are funded at a maximum of $30,000. Click here to apply!
Interested researchers can find out more about the Annual Applied Research Competition on OAR’s website. For more information, contact Cody Waters, business manager, at 703-243-9717 or firstname.lastname@example.org.
Abstracts Now Being Accepted for Health Disparities Research at the Intersection of Race, Ethnicity, and Disability: A National Conference
Abstracts are now being accepted for “Health Disparities Research at the Intersection of Race, Ethnicity, and Disability: A National Conference.” The submission deadline is January 14, 2013. Abstracts may be up to 300 words and should clearly focus on health or healthcare for people with disabilities in underserved racial or ethnic groups. Example topics include healthcare access, healthcare quality, health disparities, and health promotion. Poster and oral presentations may highlight research, best practices, community-based work, and/or policy approaches. The online submission form can be found at www.ohsu.edu/projectintersect.
The conference will be held in Washington, DC, April 25 & 26, 2013. It is being organized by the Institute on Development & Disability and Oregon Health & Science University, the National Center for Cultural Competence at Georgetown University, the Department of Disability and Human Development at the University of Illinois at Chicago, the USC UCEDD at the University of Southern California and Children’s Hospital Los Angeles, the Institute for Disability Studies at the University of Southern Mississippi, and the Project Intersect Advisory Council. The conference is sponsored by the Association of University Centers on Disabilities and the Agency for Healthcare Research and Quality. Please click here for more information.
NACCHO Annual 2013: Call for Proposals Now Open
NACCHO invites you to consider submitting an abstract proposal for NACCHO Annual 2013, which will be held July 10-12, 2013, in Dallas, TX. NACCHO’s Health and Disability Project would like to especially encourage you to consider submitting abstracts that highlight your work improving the health of people with disabilities. The abstract submission deadline is December 19, 2012. Click here to learn more!
Training Program on Surveillance and Prevention of Birth Defects and Preterm Births to be held in Geneva
The 2013 edition of the “Training Program on Surveillance and Prevention of Birth Defects and Preterm Births” will be held in Geneva, Switzerland, at WHO Headquarters from May 27-31, 2013. The Training Program is organized by the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), US Centers for Disease Control and Prevention (CDC), and the World Health Organization (WHO).
Application includes a pre-registration form, a short CV, and a letter of recommendation from a supervisor or nominating official that supports the applicant’s participation in this training program. Please email the requested documents to email@example.com by January 31, 2013. Click here to find the pre-registration form and to learn more!
The Friends of NCBDDD is a coalition of government and private sector participantswho work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD)in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof. For any questions regarding this edition or previous editions please contact Tory Christensen