April 2012

In This Issue

2011 NCBDDD Annual Report Webinar

News from our Partners
Easter Seals and CVS Caremark Help Make the First Five Years of Life Count for Kids

AAP Celebrates
Autism Awareness Month

Highlights from TSA CDC Public Health Education & Outreach Program Partnership

Limb Loss Awareness Month: News from the Amputee Coalition

HMHB Hosting Special Celebrations to Commemorate 30th Anniversary

Smart 911 Focus of
NACCHO Sponsored Webinar

Award & Funding Opportunities

Award Opportunities
ADHD Research Award Program

 Grant Opportunities
Coordinating Center for Research
and Training to Promote the
Health of People
with Developmental and
Other Disabilities

Improving Health of People with Intellectual Disabilities

Upcoming Conferences

Limb Loss Education Day
April 21, 2012
Gwinnett County Fairgrounds
Atlanta, GA

2012 Disability Policy Seminar
April 23-25, 2012
Grand Hyatt Washington
Washington, DC

2012 U.S. Olympic Committee
Paralympic Leadership Conference

April 27-30, 2012
U.S. Olympic Training Center
Colorado Springs, CO

2012 AFB Leadership Conference
May 4-5, 2012
Tradewinds Resort
St. Pete Beach, FL

Upcoming Webinars

An Overview of Smart 911:
Emergency Health Data System

April 25, 3:00-4:30 pm ET

Annual Report Webinar
April 26, 2:00-3:30 pm ET

Time Out for Genetics:
A Webinar Series
Ordering the Right Tests-
Genetics in Primary Care
May 31, 12:00-12:30 pm CT

Upcoming Course

PNPSourCE Course:
Immunization Update
Offers NAPNAP Contact and Rx Hours!

Calling for News from
NCBDDD Partners!

We welcome you to send in your
updates on conferences, meetings, special awards, and journal or
research announcements for the
next edition of the Friends
of NCBDDD E-Newsletter. Please
submit program highlights with a short summary of approximately 150-200
words to Tory Christensen by
May 11, 2012. Photos and
web links are encouraged!



Join the Friends
of NCBDDD Lists

2011 NCBDDD Annual Report Webinar

April 26, 2:00-3:30 pm ET
NCBDDD recently soft launched the latest version of the 2011 NCBDDD Annual Report and would like your input before the site is promoted. The annual report is a tool for all who want to address the issues of people living with disabilities, birth defects, and blood disorders, so it’s important to make it something that can work for you in your efforts to have an impact. We’d like to discuss this new web format with you to explore a number of things, including:

  • What do you like?  What would you change?
  • Have we adequately captured our achievements, successes, and dealings in the community?
  • Does it represent NCBDDD well in a clear and accurate way?
  • Does it adequately show how funds are put to work?
  • Do the listed activities and programs explain how they have helped to achieve our priorities?
  • Does the web format make sense and does it help you in your efforts to promote the issues?
  • How often would you like to see NCBDDD publish its report?
  • For what purpose have you used NCBDDD’s annual report in the past?

Please give the site a look and attend the webinar ready to share your thoughts:

Click here to register!

News from our Partners

Easter Seals and CVS Caremark Help Make the First Five Years of Life Count for Kids
New Free Online Screening Tool Helps Parents Determine if Kids are on Track

Easter Seals, through the generous support of the CVS CaremarkCharitable Trust, is now making it possible for parents and caregivers to easily track their children’s development through age 5 by means of a free online screening tool. Traditionally used by clinicians, therapists, professionals, and educators, Brookes Publishing’s Ages & Stages Questionnaires (ASQ) ® is now available to parents and caregivers on Easter Seals’ Make the First Five Count website. The ASQ helps monitor child development and identify potential issues so that any concerns can be readily addressed to make sure children are on track and ready to enter school.

“The online tools are an effective first step toward identifying if a child could benefit from early intervention services, “says James E. Williams, Jr., president and chief executive officer, Easter Seals.  “Easter Seals is thrilled to be making the industry-standard child development screening tool available to parents, for free and online for the very first time.”

To learn more about Make the First Five Count, click here. To learn more about the CVS Caremark All Kids Can Program and its support of Easter Seals, click here.

AAP Celebrates Autism Awareness Month
April is Autism Awareness Month, and the American Academy of Pediatrics has resources on autism for health care professionals and families on their website:  www.aap.org/autism. April’s featured resource is Sound Advice on Autism – a series of audio interviews with medical experts and parents of children with autism who answer frequently asked questions. Conversations include: screening, diagnosis, treatment, alternative therapies, prevalence and causes of autism.

Highlights from TSA CDC Public Health Education & Outreach Program Partnership
The national Tourette Syndrome Association (TSA) is in the eighth year of its public health education and outreach partnership with NCBDDD.  A range of activities are pursued each year that are designed to provide professional and public education about Tourette Syndrome (TS), and to promote accurate recognition, diagnosis, and treatment. Below are highlights from the current year:

  • TSA completed a compelling video profile of Rev. Mike Higgins — pastor, Dean of Students, Full Colonel in the U.S. Army, husband, father, and a person whose life story inspires everyone. In, Mike Higgins: Overcoming the Odds, Rev. Higgins shares his experiences with TS while urging people who have questions or are experiencing symptoms to seek medical care.  Click here to watch the video! Rev. Higgins will also speak at the TSA National Conference.
  • As part of racial, cultural, and minority outreach efforts to bring wider TS awareness to all Americans, Mike Higgins: Overcoming the Odds, will be produced on DVD and disseminated to African American churches across the country.
  • TSA will conduct outreach to providers on U.S. Military Bases. Programs will be offered at the Uniformed Services Pediatric Seminar and through the Veterans Administration Caribbean Healthcare System.
  • Intensive two-day physician education programs, unique to the TSA CDC partnership and known as Physician Training Retreats, are in development with Dr. Michael Okun and Dr. Rebecca Lehman.

For more information about the TSA CDC Public Health Education & Outreach Program Partnership, email ts@ta-usa.org.

Limb Loss Awareness Month: News from the Amputee Coalition

President Obama Recognizes April 2012 as Limb Loss Awareness Month
On Monday, April 2, The White House released a letter from President Barack Obama recognizing April 2012 as Limb Loss Awareness Month.

“As a nation, we must remain committed to ensuring that those living with limb loss have the support they need to reach their greatest potential,” wrote President Obama. “We must also provide those at risk with information that can help prevent this condition. Greater public knowledge of the causes and warning signs is essential to decreasing the rates of preventable limb loss,” the letter continued, “and by working with the limb loss community, we can help reduce new cases.”

During the month of April, Amputee Coalition volunteers and supporters will work nationwide to distribute 1 million educational postcards to those at highest risk for an amputation. The “Take a Seat, Check Your Feet” postcards direct recipients to examine their feet for the warning signs that could lead to an amputation if left untreated.

For more information, and a complete copy of President Obama’s letter, please visit the Amputee Coalition online.

Amputee Coalition Kicks off Limb Loss Awareness Month with Times Square Jumbotron Message

The Amputee Coalition launched its Limb Loss Awareness Month campaign on April 3 with a giant Jumbotron message New York City’s Times Square, urging consumers to take action and prevent suffering an avoidable amputation.

Located above the Visitor Center in Times Square, the digital billboard will air the Amputee Coalition’s PSA every 15 minutes during the month of April. The Spectacolor Clear Channel screen shows people of all ages and from all walks of life with limb loss thriving and inspiring others to take action. There are also messages encouraging those at risk for limb loss to check their feet regularly, and directing them to the Coalition’s website for more information and to obtain materials for distribution. More than 15 million people are expected to see the Amputee Coalition’s “Take a Seat, Check Your Feet” message.

The Amputee Coalition is sponsoring this month-long campaign through a generous public education grant from THOR-LO, Inc. Throughout the country, amputee support groups, veterans, prosthetists, rehabilitation centers and those with limb loss will be taking action in their community to raise awareness and help prevent amputations. Click here for more information about the campaign!

HMHB Hosting Special Celebrations to Commemorate 30th Anniversary
The National Healthy Mothers, Healthy Babies Coalition (HMHB) is turning 30! Special celebrations, both online and in Washington, DC, are bringing together friends in maternal-child health to celebrate HMHB’s three decades of education and partnership-building for healthy moms, babies, and families. Click here to join the virtual party on Facebook, and “like” the page to connect with HMHB, their network of MCH partners, and to share birthday wishes. Individuals are also encouraged to participate in HMHB’s “30 Years of Moms, Babies, & Families” contest from April 13 to May 13. Share personal reflections on how the landscape has changed for maternal-child health and parenting – the post receiving the most “likes” on HMHB’s Facebook page will be recognized with an iPad, just in time for Mother’s Day! Stories may be inspiring, serious, poignant or funny, but they should help show how far we’ve come and illuminate the path ahead. Visit the HMHB website to learn more about HMHB and access resources such as archived webinars and “Interviews with Experts” series.

Smart 911 Focus of NACCHO Sponsored Webinar
April 25, 3:00-4:30 pm ET
Join NACCHO’s Learning Community on Emergency Planning and Preparedness for People with Disabilities as they sponsor a webinar about Smart 911.

Smart 911, an emergency health data system and an alternative to emergency registries, will present a webinar on the Smart 911 system, how it is used, how it can benefit people with disabilities, and how local health departments can benefit from use of the system.

When an individual calls 9-1-1 today, the operator receives little information other than a phone number and general location. In a situation where seconds count, being able to provide the operator with other critical information the instant the call is made can be the difference between life and death. Smart911 is a nationwide service that allows citizens to create a free, secure, and private “Safety Profile.”

Click here to register!

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