Welcome to the Friends of NCBDDD!

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders. NCBDDD’s work is described by the Center’s four thematic areas:

Saving babies through birth defects prevention and researchSaving babies through birth defects prevention and researchProtecting people and preventing complications of blood disordersImproving healthfor people with disabilities

 

 

 

 

Interested in learning more about becoming a member of the Friends, click here.

Announcements

  1. Elections Reminder – Updated List of Nominees
    Don’t forget to cast your organization’s vote for new Executive Committee members! To correct for an administrative oversight, we have an updated list of nominees for the member at large slots. The updated list can be found here. You can cast your vote here. Due to the change in list of nominees, we’ll be extending the last day for elections to November 30. If your organization would like to change its previously registered vote based on the new list of candidates, please visit the survey and vote again. As a reminder, you will be voting for the Chair position, Vice Chair position, and three Member at Large positions (Term: January 1, 2018 – December 31, 2019). Please reach out to me (rabbott@marchofdimes.org) with any questions.
  2. CDC Coalition Funding Letter
    The CDC Coalition is circulating year-end FY 2018 sign-on letters to House and Senate Appropriations Committee and Labor-HHS-Ed Appropriations Subcommittee leaders requesting at least $7.8 billion for CDC’s programs in any final FY 2018 funding bill and a restoration of the cuts that were made to several CDC programs in the House and Senate Appropriations Committee-passed bills from earlier this year. The letters (attached) also call on committee leaders to protect funding for the Public Health and Prevention Fund. Please fill out this form by COB Friday, Dec. 1 if you can add your state or national organization to the letter. Filling out the form once will add you to both letters. Thanks in advance for your consideration and feel free to contact Don Hoppert, Director, Government Affairs, American Public Health Association, (donald.hoppert@apha.org) with any questions.
  3. Now Archived: Friends NCBDDD Quarterly Check
    • The webinar was originally hosted on September 28, 2017. View the recording HERE
  4. New Friends of NCBDDD Executive Committee elected, terms began January 2017
  5. CALLING FOR CHAMPIONS: The Executive Committee needs your help to serve as a Champion in one or more of the four thematic areas. Learn More
  6. Now Archived: FY 2018 NCBDDD Budget Briefing Webinar
    • About the webinar:
      • Join the Friends of NCBDDD for a review of the President’s FY 2018 budget request for the Center with Dr. Coleen Boyle, NCBDDD Director.
    • View the archive:
      • The webinar was originally hosted on June 22, 2017. View the recording HERE
    • Webinar Resources:
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