Welcome to the Friends of NCBDDD!

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders. NCBDDD’s work is described by the Center’s four thematic areas:

Saving babies through birth defects prevention and researchSaving babies through birth defects prevention and researchProtecting people and preventing complications of blood disordersImproving healthfor people with disabilities

 

 

 

Interested in learning more about becoming a member of the Friends, click here.

Announcements

  1. Disability Inclusion: NIH All of Us Research Program
    Thursday, June 21, 2018, 2:00 p.m. – 3:00 p.m. ET
    Please join the Friends of NCBDDD for this webinar to inform disability and health organizations, researchers, public health practitioners and key influencers about the All of US Research Program, as well as the importance of including people with disabilities in this large inclusive research program. The American Association on Health and Disability (AAHD) is partnering with NIH to increase awareness about this important and inclusive national research program. The webinar will include information about ways the disability community can be engaged in this national effort across communities in the United States. Speakers from HCM Strategists,  representing the All of Us Research Program Engagement Team and the American Association on Health and Disability will provide an overview of the program, as well as descriptions of efforts currently underway. A questions and answer segment will follow the presentation. Please join the Friends of NCBDDD for this informative webinar that will highlight how advocates, researchers and people with disabilities can be involved.  Webinar Recording – Presentation Slides – Presentation Transcript
  2. APHA Disability Call for 2018 Nominations
    Do you have a colleague who has made an outstanding contribution to advance disability and health? Submit a nomination! Nominators do not need to be members of the APHA Disability Section. See the attached eligibility criteria for each award listed to determine the nominee’s membership requirements associated with each particular award.
  3. Announcing the 2018 Executive Committee
  4. New NCBDDD State Fact Sheets
    The National Center on Birth Defects and Disabilities (NCBDDD) supports efforts and initiatives across the country to identify the causes of birth defects and developmental disabilities; help children to develop and reach their full potential; and promote the health and well-being among people of all ages with disabilities, including blood disorders. Learn how NCBDDD is making a difference in your state.
  5. CALLING FOR CHAMPIONS: The Executive Committee needs your help to serve as a Champion in one or more of the four thematic areas. Learn More
  6. Now Archived: Friends NCBDDD Quarterly Check
    • The webinar was originally hosted on September 28, 2017. View the recording HERE
  7. Now Archived: FY 2018 NCBDDD Budget Briefing Webinar
    • About the webinar:
      • Join the Friends of NCBDDD for a review of the President’s FY 2018 budget request for the Center with Dr. Coleen Boyle, NCBDDD Director.
    • View the archive:
      • The webinar was originally hosted on June 22, 2017. View the recording HERE
    • Webinar Resources: