About Us

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders.

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) was established in April 2001 as a result of the passage of the Children’s Health Bill of 2000 (H.R. 4365-P.L. 106-310).  You can learn more about the NCBDDD at http://www.cdc.gov/ncbddd/.

The NCBDDD promotes the health of babies, children, and adults; and enhance the potential for full, productive living.  The Center’s work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.

The Friends of the NCBDDD grew out of efforts by a broad based coalition to pass the Children’s Health Act which authorized the NCBDDD.  These organizations formed the basis for the Friends of NCBDDD which has set as its mission the support and enhancement of the NCBDDD.  The Friends of NCBDDD is dedicated to supporting the broad base of work of the NCBDDD and to disseminate information and educate constituencies about the work of the Center.  The Friends of NCBDDD provides information and serves as a resource to the Center about needs, gaps in knowledge, services, and policy options.

 Friends of NCBDDD Fact Sheet [124 KB, ]

Executive Committee 2015
Read Executive Committee Bios here!

Chair
Adriane Griffen, AUCD
Term: 2015-2016

Vice Chair:
Sara Struwe, SBA
Term: 2015-2016

Communications Co – Chair:
 Jennifer Li, NACCHO
Term: 2015-2016

Kendall Leser, NACCHO
Term: 2015-2016

Membership/Communications Chair:
Beverly Robertson, MOD
Term: 2014-2015

Secretary:
Patrick Johnson, AAP
Term: 2014-2015

Members-at-Large:
Angela Blackwell, RTI International
Term: 2014-2015

Kathy Brill, Parent to Parent, USA
Term: 2015-2016

Jeff Cohen, Fragile X
Term: 2014-2015

Barbara Kornblau 
Term: 2014-2015

April Montgomery, NBDPN
Term: 2015-2016

Advocacy Co-Chairs:
Diane Wilkinson, MOD – Saving Babies
Annie Acosta, The Arc – Improving Health and Advocacy Liaison to Executive Committee
Katie Verb, HFA – Helping People
Patrick Johnson, AAP – Helping Children

Immediate Past Chair:
Roberta Carlin, American Association on Health and Disability
Term: 2015-2016

EPG Fiscal Agent Contact:
Andrew J. Imparato, Association of University Center on Disabilities

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