About Us

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders.

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) was established in April 2001 as a result of the passage of the Children’s Health Bill of 2000 (H.R. 4365-P.L. 106-310).  You can learn more about the NCBDDD at http://www.cdc.gov/ncbddd/.

The NCBDDD promotes the health of babies, children, and adults; and enhance the potential for full, productive living.  The Center’s work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.

The Friends of the NCBDDD grew out of efforts by a broad based coalition to pass the Children’s Health Act which authorized the NCBDDD.  These organizations formed the basis for the Friends of NCBDDD which has set as its mission the support and enhancement of the NCBDDD.  The Friends of NCBDDD is dedicated to supporting the broad base of work of the NCBDDD and to disseminate information and educate constituencies about the work of the Center.  The Friends of NCBDDD provides information and serves as a resource to the Center about needs, gaps in knowledge, services, and policy options.

 Friends of NCBDDD Fact Sheet [124 KB, ]

 2013 – Friends of NCBDD Org Chart [66 KB, ]

 Learn more about the Leadership Team at NCBDDD

Executive Committee 2013
Read Executive Committee Bios here!

Chair
Adriane Griffen, Association of University Centers on Disabilities

Vice Chair:
Craig Mason, National Birth Defects Prevention Network

Membership/Communications Chair:
Sarah Yates, National Association of County and City Health Officials

Secretary:
Patrick Johnson, American Academy of Pediatrics

Members-at-Large:
Angela Blackwell, RTI
Jeff Cohen, National Fragile X Foundation
Barbara Kornblau, National Blood Clot Alliance
Sara Struwe, Spina Bifida Association
Mary Andrus, Easter Seals

Advocacy Coalition Liaison:
Emil Wigode, March of Dimes

Advocacy Coalition Co-Chairs:
Annie Acosta, The Arc
Joe Isaacs, National Blood Clot Alliance

Immediate Past Chair:
Roberta Carlin, American Association on Health and Disability
Term: 2013-2014

EPG Fiscal Agent Contact:
Andrew J. Imparato, Association of University Center on Disabilities

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