Welcome to the Friends of NCBDDD!
The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders.
- Friends Quarterly Check In
Wednesday, December 2
- Friends In Person Meeting
Tuesday, January 26, 2015
Please join the Friends of NCBDDD on a webinar to discuss advancements made in health care for Americans with disabilities over the last twenty-five years and recommendations for further progress. Recently, the New England Journal of Medicine (NEJM) published the Perspective entitled “Health Care for Americans with Disabilities — 25 Years after the ADA.” Presentations and discussion during this webinar will focus on the topics outlined in the Perspective, including gains in public health and healthcare systems, persisting health and healthcare disparities, and how health practitioners and delivery systems can play a role in improved care. Download the presentation slides here: Health Care for Americans with Disabilities — 25 Years after the ADA pdf.
The Friends of NCBDDD Executive Committee is excited to report that they have collaborated with NCBDDD to develop four Friends focus areas:
The Executive Committee needs your help to serve as a Champion in one or more of the focus areas listed above. As a Champion, you would recruit Friends who have an interest in the particular focus areas as well as have the opportunity to provide content area expertise, join the newly formed Friends Communications Committee to coordinate messaging, and help tailor specific messages for key target audiences. The Executive Committee is looking for Friends that have expertise in communications, marketing, government relations, and family member experience. The time commitment would involve a 1 year term, with an option to renew for an additional year. It would also involve a monthly commitment of 1-2 hours, including joining the Communications Committee calls. Click here to read more about the specific responsibilities of a Champion.
The Executive Committee invites you to serve on Thematic Area “kitchen cabinets” of key partners who will advise the Champions and the NCBDDD in each of the Thematic Areas. Acting as a think tank, each Thematic Area kitchen cabinet will be composed of a group of 10-15 key partners whose mission and work relate to the particular Thematic Area. The time commitment would involve quarterly conference calls. If you are interested in serving on Thematic Area “kitchen cabinet,” please contact the Friends Chair, Adriane Griffen, at email@example.com.
This is our shared 2015 strategy for the Friends. This version reflects the input from our working groups and the Executive Committee. Keep the momentum going by thinking about ways that your organization can integrate these strategies into ongoing efforts already underway.
Friends of NCBDDD Workgroup Meeting
Archived Tele-Briefing: Prevalence of Disability and Disability Type Among Adults
NCBDDD Fiscal Year 2014 Annual Report Available
Download the report to find information about the Center’s budget, state funding, accomplishments, future directions and notable scientific publications.