Welcome to the Friends of NCBDDD!

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in identifying the causes of birth defects and developmental disabilities; helping children to develop and reach their full potential; and promoting health and well-being among people of all ages with disabilities, including blood disorders.

Announcements

Friends of NCBDDD Workgroup Meeting

Saving babies workgroupMany thanks to all who participated in our Friends of NCBDDD working meeting!  We made some terrific progress toward a shared 2015 strategy.  The Executive Committee met immediately following yesterday’s meeting to begin pulling together the draft work plan for the full coalition, based on each of our thematic area work groups. An updated work plan will be shared with the full Friends coalition in mid-December. View working meeting materials below:

Friends of NCBDDD Family Liaison Opportunity Awarded to Family Voices

The Friends of CDC’s National Center on Birth Defects and Developmental Disabilities is excited to announce that Family Voices has been selected as its Family Liaison.  The overarching purpose of this Family Liaison is to enhance the reach of the Friends of NCBDDD to families.  Family Voices will advise the Friends and contribute to educational strategies that enhance communication between families and key target audiences of the Friends of NCBDDD including policy makers, non-government organizations, and service providers.  Family Voices brings a national and state presence of family-led health promotion and service programs, as well as demonstrated experience in listening to and including the input of families in programs.  Family Voices will encourage involvement of family members, parents, and people living with a disability in Friends of NCBDDD activities in our four thematic focus areas.  Many thanks to the review panel, which included several members of the Executive Committee: Angela Blackwell, Roberta Carlin, Mary Andrus, and Patrick Johnson.

Congratulations to our New Champions – View current Champions!

The Friends of NCBDDD Executive Committee is excited to report that they have collaborated with NCBDDD to develop four Friends focus areas:

Saving Babies through Birth Defects Research and PreventionSaving babies through birth defects prevention and research

Understanding Autism to Help Children Live to the FullestHelping children live to the fullest by understanding developmental disabilities like autism

Protecting People and Preventing Complications of Blood DisordersProtecting people and preventing complications of blood disorders

Improving the Health of People with DisabilitiesImproving the health of people with disabilities

The Executive Committee needs your help to serve as a Champion in one or more of the focus areas listed above. As a Champion, you would recruit Friends who have an interest in the particular focus areas as well as have the opportunity to provide content area expertise, join the newly formed Friends Communications Committee to coordinate messaging, and help tailor specific messages for key target audiences. The Executive Committee is looking for Friends that have expertise in communications, marketing, government relations, and family member experience. The time commitment would involve a 1 year term, with an option to renew for an additional year. It would also involve a monthly commitment of 1-2 hours, including joining the Communications Committee calls. Click here to read more about the specific responsibilities of a Champion.

Click here to view current Champions!

If you are interested in serving as a Champion, please contact the Friends Chair, Adriane Griffen at agriffen@aucd.org. It’s a great way to connect with the Executive Committee, NCBDDD, and other members of the Friends!

Recent News

NCBDD Fiscal Year 2013 Annual Report Available
Download the report to find information about the Center’s budget, state funding, accomplishments, future directions and notable scientific publications.

Download PDF version of the report here.
Find the report online here.

Recent Webinars
A CDC Webinar for Clinicians and Healthcare Providers: Recommending Physical Activity for Patients with Disabilities

View the webinar

Friends of NCBDDD: President’s Budget Review

View the webinar

Friends of NCBDDD & ACA Implementation: National Disability Navigator Resource Collaborative

pdf File  Friends of NCBDDD & ACA Implementation: National Disability Navigator Resource Collaborative [DOWNLOAD]

View the webinar

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